炎症性肠病患者疾病获益感现状及影响因素分析

doi:10.16460/j.issn1008-9969.2022.06.001

摘要/Abstract

摘要： 目的调查炎症性肠病患者疾病获益感水平,并分析其影响因素。方法采用便利抽样法选取于2020年10月—2021年7月在南京医科大学第一附属医院就诊的246例炎症性肠病患者为研究对象,使用一般资料调查表、疾病获益感量表、慢性病病耻感量表、伯克利情绪表达量表、家庭亲密度与适应性量表进行调查,采用多元线性回归分析炎症性肠病患者疾病获益感的影响因素。结果炎症性肠病患者疾病获益感得分为（60.83±18.28）分;多元线性回归分析结果显示,疾病活动度、病耻感、自我表露及家庭功能是疾病获益感的影响因素（P≤0.001）,共解释总变异的50.6%。结论炎症性肠病患者疾病获益感处于中等偏下水平,医护人员应重视对该人群疾病获益感的评估,重点关注处于疾病活动期的患者,鼓励存在病耻感的患者表达疾病相关感受,改善患者家庭成员的亲密关系和适应能力,以提升患者的疾病获益感。

关键词: 炎症性肠病, 疾病获益感, 病耻感, 自我表露, 家庭功能

Abstract: Objective To survey the benefit finding among patients with inflammatory bowel diseases (IBD) and analyze its influencing factors. Methods The convenient sampling method was used to select 246 patients with IBD in the First Affiliated Hospital of Nanjing Medical University from October 2020 to July 2021. General information questionnaire, Benefit Finding Scale, Stigma Scale for Chronic Illness, Berkeley Expressivity Questionnaire, and Cohesion and Adaptability Scale were used to conduct the investigation. Multiple linear regression was used to analyze the factors influencing the benefit finding of patients with IBD. Results The score of benefit finding in patients with IBD was 60.83±18.28. Multiple linear regression analysis showed that disease activity, stigma, self-disclosure, and family function were the influence factors of benefit finding among patients with IBD (P≤0.001), which explained 50.6% of the total variation. Conclusion The benefit finding among patients with IBD was at a low-medium level. To enhance benefit finding, medical staff should pay close attention to the assessment in this population, especially in patients in the active phase of the disease, encourage patients with a sense of stigma to express their disease-related feelings and improve their family relationship and adaptability.

Key words: inflammatory bowel diseases, benefit finding, stigma, self-disclosure, family function

中图分类号:

R473.57

孙彩云, 林征, 周美景, 顾子君, 王咪, 顾珺怡, 朱展慧. 炎症性肠病患者疾病获益感现状及影响因素分析[J]. 护理学报, 2022, 29(6): 1-6.

SUN Cai-yun, LIN Zheng, ZHOU Mei-jing, GU Zi-jun, WANG Mi, GU Jun-yi, ZHU Zhan-hui. Current Status of Benefit Finding among Patients with Inflammatory Bowel Diseases and Its Influence Factors[J]. Journal of Nursing, 2022, 29(6): 1-6.

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