糖尿病患者病耻感影响因素的研究进展

doi:10.16460/j.issn1008-9969.2019.03.024

摘要/Abstract

摘要： 目的对糖尿病患者病耻感影响因素的研究进展进行综述,为制定针对性的干预措施提供参考。方法对相关文献资料进行检索与回顾,总结归纳国内外关于糖尿病患者病耻感影响因素的研究进展。结果糖尿病患者病耻感的影响因素主要包括:社会层面,即糖尿病刻板印象的存在;医院层面,即医务工作者理解的不足;家庭层面,即家庭支持的欠缺;个人层面,即疾病隐匿困难、糖尿病并发症的困扰、生育安全的担忧。结论糖尿病病耻感的影响因素多,针对糖尿病病耻感的干预研究是未来的研究方向。

关键词: 糖尿病, 病耻感, 污名, 影响因素

中图分类号:

R473.58

杨婧, 郭洪花, 张彩虹. 糖尿病患者病耻感影响因素的研究进展[J]. 护理学报, 2019, 26(3): 24-27.

参考文献

[1] Wagener M N, Miedema H S, Kleijn L M, et al.Vocational Counseling of HIV-infected People: A Role for Nurses in HIV Care[J]. J Assoc Nur AIDS Care, 2015, 26(4):330-339. DOI:10.1016/j.jana.2015.03.001.
[2] Mcginty E E, Goldman H H, Pescosolido B, et al.Portraying Mental Illness and Drug Addiction as Treatable Health Conditions: Effects of a Randomized Experiment on Stigma And Discrimination[J]. Soc Sci Med,2015, 126:73-85. DOI:10.1016/j.socscimed.2014.12.010.
[3] Heimlich T E, Westbrook L E, Austin J K, et al.Brief Report: Adolescents' Attitudes Toward Epilepsy: Further Validation of the Child Attitude Toward Illness Scale (CATIS)[J]. J Pedia Psychol, 2000, 25(5):339. DOI:10.1093/jpepsy/25.5.339.
[4] Gredig A.Experiences of Stigma in People Living with Diabetes Mellitus in Switzerland[C]// Meeting of the Swiss Society of Endocrinology and Diabetes. 2014.
[5] Teixeira M E, Budd G M.Obesity Stigma: A Newly Recognized Barrier to Comprehensive and Effective Type 2 Diabetes Management[J]. J Am Assoc Nur Pract, 2010, 22(10):527-533.DOI:10.1111/j.1745-7599.2010.00551.x.
[6] Schabert J, Browne J L, Mosely K, et al.Social Stigma in Diabetes: A Framework to Understand a Growing Problem for an Increasing Epidemic[J]. Patient-patient Centered Outcomes Research, 2013, 6(1):1-10. DOI:10.1007/s40271-012-0001-0.
[7] Hevey D.What's Distressing about Having Type 1 Diabetes? A Qualitative Study of Young Adults' Perspectives[J]. Bmc Endocrine Disorders,2013,13(1):25.DOI:10.1186/1472-6823-13-25.
[8] Kato A, Fujimaki Y, Fujimori S, et al.Psychological And Behavioural Patterns of Stigma Among Patients with Type 2 Diabetes: A Cross-sectional Study[J]. BMJ Open, 2017, 7(3):e013425. DOI:10.1136/bmjopen-2016-013425.
[9] Lee S M, Lim L C, Koh D.Stigma among Workers Attending a Hospital Specialist Diabetes Clinic[J].Occup Med,2015,65(1):67-71. DOI:10.1093/occmed/kqu150.
[10] Fatima J A, Mohammad W, Nick B, et al.Barriers to Medication Taking Among Kuwaiti Patients with Type 2 Diabetes: A Qualitative Study[J]. Patient Preference and Adherence, 2015,9:1491-1503. DOI:10.2147/PPA.S86719.
[11] Irani M D, Abdoli S, Bijan I, et al.Strategies to Overcome Type 1 Diabetes-related Social Stigma in the Iranian Society[J]. Iran J Nurs Midwif Res, 2014, 19(5):456-463.
[12] Chatterjee S, Biswas P.Psycho-social Stigma Among Type 1 Diabetes Mellitus Patients[J]. Ind J Med Spec, 2013, 4(1):55-58.
[13] Earnshaw V A, Quinn D M.The Impact of Stigma in Healthcare on People Living with Chronic Illnesses[J]. J Health Psychol, 2012,17(2):157-168.DOI:10.1177/1359105311414952.
[14] Nicolucci A, Kovacs Burns K, Holt R I G, et al. Diabetes Attitudes, Wishes and Needs Second Study (DAWN2): Cross-national Benchmarking of Diabetes-related Psychosocial Outcomes for People with Diabetes[J]. Diabetic Med, 2013, 30(7):767-777. DOI:10.1111/dme.12245.
[15] Erving. Stigma: Notes on the Management of Spoiled Identity[J]. Am J Sociol, 1969, 45(527):642. DOI:10.1136/pgmj.45.527.642.
[16] Link B G, Phelan J C.Conceptualizing Stigma[J]. Annual Rev Sociol, 2001, 27(1):363-385. DOI:10.1146/annurev.soc.27.1.363.
[17] Whittle H J, Palar K, Ranadive N A.The Land of the Sick and the Land of the Healthy Disability, Bureaucracy, And Stigma among People Living with Poverty and Chronic Illness in the United States[J]. Soc Sci Med, 2017, 190(7):181. DOI:10.1016/j.socscimed.2017.08.031.
[18] 石颖,王守琦,英杰,等. 患者病耻感的干预研究进展[J]. 护理学杂志,2016, 31(22):104-108. DOI:10.3870/j.issn.1001-4152.2016.22.104.
[19] Gredig D, Bartelsen-Raemy A.Diabetes-Related Stigma Affects the Quality of Life of People Living with Diabetes Mellitus in Switzerland: Implications for Healthcare Providers[J]. Health Social Care in the Community,2016:1-14. DOI:10.1111/hsc.12376.
[20] Stigma.Über Techniken der Bewältigung Beschädigter Identität[M]// Suhrkamp, Frankfurt:Schlüsselwerke der Identitätsforschung. VS Verlag für Sozialwissenschaften, 2010. DOI:10.1007/978-3-531-92196-9_8.
[21] Link B G, Phelan J C.Conceptualizing Stigma[J]. Annual Review of Sociology, 2001, 27(1):363-385. DOI:10.1146/annurev.soc.27.1.363.
[22] Major B, O'Brien L T. The Social Psychology of Stigma[J]. Annual Review of Psychology, 2005, 56(1):393-421. DOI:10.1146/annurev.psych.56.091103.070137.
[23] Browne J L, Ventura A, Mosely K, et al.“I Call It The Blame And Shame Disease”: A Qualitative Study About Perceptions of Social Stigma Surrounding Type 2 Diabetes[J].BMJ Open,2013,3(11):e003384-e003384.DOI:10.1136/bmjopen-2013-003384.
[24] Muze K C, Majaliwa E S.Type 1 Diabetes Care Updates: Tanzania[J]. 2015, 19(Suppl 1):S12-S13.DOI:10.4103/2230-8210.155348.
[25] Barnard K D, Peyrot M, Holt R I G. Psychosocial Support for People with Diabetes: Past, Present and Future[J]. Diabetic Medicine A Journal of the British Diabetic Association, 2012, 29(11):1358-1360. DOI:10.1111/j.1464-5491.2012.03727.x.
[26] Smith-Miller C A, Berry D C, Miller C T. Diabetes Affects Everything:Type 2 Diabetes Self-management among Spanish-speaking Hispanic Immigrants[J]. Res Nurs Health, 2017,40:541-554. DOI:10.1002/nur.21817.
[27] Jaacks L M, Liu W, Ji L, et al.Type 1 Diabetes Stigma in China: A Call to End the Devaluation of Individuals Living with a Manageable Chronic Disease[J]. Diabetes Res Clin Pr, 2015, 107(2):306-307. DOI:10.1016/j.diabres.2014.12.002.
[28] Brohan E, Clement S, Rose D, et al.Development and Psychometric Evaluation of the Discrimination and Stigma Scale (DISC)[J]. Psychiatry Res, 2013, 208(1):33-40. DOI:10.1055/s-0031-1277768.
[29] Thompson V L S, Noel J G, Campbell J. Stigmatization, Discrimination, and Mental Health: The Impact of Multiple Identity Status[J]. American Journal of Orthopsychiatry, 2004, 74(4):529-544. DOI:10.1037/0002-9432.74.4.529.
[30] Wright F E R. The Dimensionality of Stigma: A Comparison of its Impact on the Self of Persons with HIV/AIDS and Cancer[J]. Journal of Health and Social Behavior, 2000, 41(1):50-67. DOI:10.2307/2676360.
[31] Browne J L, Ventura A, Mosely K, et al.‘I'm Not A Druggie, I'm Just A Diabetic': A Qualitative Study Of Stigma from the Perspective of Adults with Type 1 Diabetes[J]. Bmj Open, 2014, 4(7):e005625. DOI:10.1136/bmjopen-2014-005625.
[32] Trief P M, Sandberg J G, Dimmock J A, et al.Personal and Relationship Challenges of Adults with Type 1 Diabetes: A Qualitative Focus Group Study[J]. Diabetes Care, 2013, 36(9):2483-2488. DOI:10.2337/dc12-1718.
[33] Vaz M, Travasso S M, Vaz M.Perceptions Of Stigma Among Medical and Nursing Students and Tuberculosis and Diabetes Patients at a Teaching Hospital in Southern India[J]. Indian Journal of Medical Ethics, 2016, 13(1):8-16. DOI:10.20529/IJME.2016.003.
[34] Kalra B, Kalra S, Kumar A.Social Stigma and Discrimination: A Care Crisis for Young Women with Diabetes in India[J]. 2009,(54):37-39.
[35] Singh H, Cinnirella M, Bradley C.Support Systems for and Barriers to Diabetes Management in South Asians and Whites in the UK: Qualitative Study of Patients" Perspectives[J]. BMJ Open, 2012, 2(6):e001459-e001459. DOI:10.1136/bmjopen-2012-001459.
[36] Tanenbaum M L, Ritholz M D, Binko D H, et al.Probing for Depression and Finding Diabetes: A Mixed-methods Analysis of Depression Interviews with Adults Treated for Type 2 Diabetes[J]. Journal of Affective Disorders, 2013, 150(2):533-539. DOI:10.1016/j.jad.2013.01.029.

Metrics

Viewed

Full text

Abstract

Cited

Shared