以质量求发展,以服务铸品牌

护理学报 ›› 2021, Vol. 28 ›› Issue (3): 34-38.doi: 10.16460/j.issn1008-9969.2021.03.034

• 循证护理 • 上一篇    下一篇

炎症性肠病患者饮食管理软件应用评价

顾子君1, 林征1,2, 周美景1, 顾芳臣1, 罗丹3   

  1. 1.南京医科大学 护理学院,江苏 南京 211166;
    2.南京医科大学第一附属医院(江苏省人民医院) 护理部,江苏 南京 210029;
    3.北京大学 护理学院,北京 100191
  • 收稿日期:2020-08-07 发布日期:2021-03-12
  • 通讯作者: 林征(1967-),女,上海人,硕士,教授。
  • 作者简介:顾子君(1996-),女,江苏宿迁人,本科学历,硕士研究生在读。
  • 基金资助:
    江苏省高校优势学科建设工程项目“护理学”(苏政办发〔2018〕87号); 江苏省医学创新团队项目(CXTDA2017019)

Assessment of Mobile Applications of Dietary Management for Patients with Inflammatory Bowel Disease

GU Zi-jun1, LIN Zheng1, 2, ZHOU Mei-jing1, GU Fang-chen1, LUO Dan3   

  1. 1. School of Nursing, Nanjing Medical University, Nanjing 211166, China;
    2. Dept. of Nursing Administration,the First Affiliated Hospital of Nanjing Medical University Jiangsu Provincial People's Hospital, Nanjing 210029, China;
    3. School of Nursing, Peking University, Beijing 100191, China
  • Received:2020-08-07 Published:2021-03-12

摘要: 目的 评价国内外炎症性肠病患者饮食管理软件,探究其基本功能设置及性能。方法 在Android、IOS应用商店中搜索截至2020年3月发布的与炎症性肠病患者饮食管理相关软件,下载并安装后对软件基本功能设置及性能进行评价。结果 共纳入18个炎症性肠病患者饮食管理相关软件,Android系统2个,IOS系统14个,IOS及Android兼容系统2个;版本1.X 7个,2.X 6个,3.X及以上4个,1个版本不详;纳入的均为英文软件。功能数2~15(6.8±3.9)个,软件功能主要涉及饮食记录(14/18)个,食谱参考(4/18)个,饮食咨询(3/18)个,饮食查询(5/18)个,饮食不良反应记录反馈(4/18)个,食物消化情况(2/18)个,个性化饮食管理设置(7/18)个,饮食教育(8/18)个。另有其他辅助功能如症状管理、情绪管理、药物管理、厕所定位、信息发送等。在纳入的软件中,50%有使用指导,33.3%提供了参考资料来源,44.4%有专业医护人员参与软件开发。结论 市面上正在运营的炎症性肠病患者饮食管理软件均来自国外且质量良莠不齐,多数软件功能不全面,如缺少炎症性肠病患者营养摄入需求的评估模块,缺乏对患者饮食不良反应的关注,饮食推荐不符合我国人群饮食习惯等软件对患者实验室检查结果的关注度较低,难以判断饮食管理效果。另外,大部分软件的信息设计未循证相关指南,缺乏专业医疗人员参与,科学性较差,建议改良或开发适合我国国情的炎症性肠病患者饮食管理软件。

关键词: 炎症性肠病, 移动医疗, 饮食管理, APP

Abstract: Objective To explore the basic function and performance of mobile applications of dietary management for patients with inflammatory bowel disease(IBD). Methods Mobile applications of dietary management for IBD were searched by March 2020 in Android and IOS app stores. Results Eighteen English mobile applications for patients with IBD to manage the diet were included, including 2 in android systems, 14 IOS in systems and 2 both in IOS and android systems. Of the total, 7 were in Version 1. X; 6 in Version 2. X; 4 in Version 3. X and above and 1 Version was unknown. Totally,6.8±3.9 APPs had 2-15 parts, mainly about diet record (14/18), recipe reference (4/18), diet counseling (3/18), diet inquiries(5/18), record and feedback of diet adverse reactions (4/18), food digestion (2/18), personalized diet management (7/18), and diet education (8/18). There were other auxiliary functions, such as symptom management, emotional management, medication management, toilet positioning, information transmission, etc. Half of the 18 Apps provided instruction guidance; 33.3% reference sources, and 44.4% had professional medical instructors involving in software development. Conclusion At present, all APPs for patients with IBD are from abroad and most of the APPs have incomprehensive functions, such as without assessment modules for inflammatory bowel disease nutrition need, insufficient attention to adverse food reactions, unsuitable recommendations for Chinese patients, etc. meanwhile, without enough attention to laboratory examination results of the patients, without evidence-based related guidelines and participation of professional medical personnel in the development, most of the applications needs to be further updated. Applications suitable for Chinese patients are in urgent need.

Key words: inflammatory bowel disease, mobile medical, dietary management, APP

中图分类号: 

  • R473.5
[1] GBD 2017 Inflammatory Bowel Disease Collaborators. The Global,Regional, and National Burden of Inflammatory Bowel Disease in 195 Countries and Territories, 1990-2017: a Systematic Analysis for the Global Burden of Disease Study 2017[J].BD 2017 Inflammatory Bowel Disease Collaborators. The Global,Regional, and National Burden of Inflammatory Bowel Disease in 195 Countries and Territories, 1990-2017: a Systematic Analysis for the Global Burden of Disease Study 2017[J]. Lancet Gastroenterol Hepatol, 2020,5(1):17-30. DOI:10.1016/S2468-1253(19)30333-4.
[2] Ng SC, Shi HY, Hamidi N, et al.Worldwide incidence and prevalence of Inflammatory Bowel Disease in the 21st Century: a systematic review of population-based studies [Published Correction Appears in Lancet.2020 Oct 3;396(10256):e56]. Lancet. 2018;390(10114):2769-2778. DOI:10.1016/S0140-6736(17)32448-0
[3] Ng SC, Kaplan GG, Tang W, et al.Population Density and Risk of Inflammatory Bowel Disease: A Prospective Population-Based Study in 13 Countries or Regions in Asia-Pacific[J]. Am J Gastroenterol,2019,114(1):107-115.DOI:10.1038/s41395-018-0233-2.
[4] Piovani D, Danese S, Peyrin-Biroulet L, Bonovas S.Inflammatory Bowel Disease: Estimates from the Global Burden of Disease 2017 Study[J]. Aliment Pharmacol Ther, 2020,51(2):261-270. DOI:10.1111/apt.15542.
[5] Gu P, Feagins LA.Dining with Inflammatory Bowel Disease: A Review of the Literature on Diet in the Pathogenesis and Management of IBD[J]. Inflamm Bowel Dis, 2020, 26(2):181-191. DOI:10.1093/ibd/izz268.
[6] 顾芳臣,林征,尚星辰,等. 基于文献计量学的我国炎症性肠病患者自我管理研究现状及趋势分析[J]. 中华现代护理杂志,2019,25(36):4740.
[7] Sood A, Ahuja V, Kedia S, et al.Diet and Inflammatory Bowel Disease:The Asian Working Group Guidelines[J]. published correction appears in Indian J Gastroenterol.2019 Dec;38(6):558-559. Indian J Gastroenterol, 2019,38(3):220-246. DOI:10.1007/s12664-019-00976-1.
[8] Bernstein CN, Eliakim A, Fedail S, et al.World Gastroenterology Organisation Global Guidelines Inflammatory Bowel Disease:Update August 2015[J]. J Clin Gastroenterol, 2016,50(10):803-818. DOI:10.1097/MCG.0000000000000660.
[9] Kaenkumchorn T, Kesavan A.Dietary Management of Pediatric Inflammatory Bowel Disease[J]. J Med Food, 2019,22(11):1092-1099. DOI:10.1089/jmf.2019.0063.
[10] Mentella MC, Scaldaferri F, Pizzoferrato M, et al. Nutrition, IBD and Gut Microbiota: A Review[J]. Nutrients, 2020;12(4):944. Published 2020 Mar 29.DOI:10.3390/nu12040944.
[11] 赵青,余洁,汤婷,颜涵,等.2014-2018年我国移动护理应用研究文献计量分析[J].护理学报, 2019,26(9):32-36. DOI:10.16460/j.issn1008-9969.2019.09.032.
[12] 李帆,潘欣宇,唐喻莹,等.乳腺癌化疗患者对延续护理App功能的需求调查[J].护理学报,2017,24(20):1-3. DOI:10.16460/j.issn1008-9969.2017.20.001.
[13] Yin AL, Hachuel D, Pollak JP,et al. Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review[J]. J Med Internet Res, 2019,21(8):e14630. Published 2019 Aug 19. DOI:10.2196/14630.
[14] 吴林晔,周云仙. 炎症性肠病管理软件评价[J]. 护理研究, 2017, 31(14):1770-1773.
[15] Walsh A, Travis S.What's App? Electronic Health Technology in Inflammatory Bowel Disease[J]. Intest Res, 2018,16(3):366-373. DOI:10.5217/ir.2018.16.3.366.
[16] Ho KF, Ho CH, Chung MH.Theoretical Integration of User Satisfaction and Technology Acceptance of the Nursing Process Information System[J].PLoS One,2019,14(6):e0217622. DOI:10.1371/journal.pone.0217622.
[17] Quinn CC, Chard S, Roth EG, et al.The Telemedicine for Patients with Inflammatory Bowel Disease(TELE-IBD) Clinical Trial: Qualitative Assessment of Participants' Perceptions[J]. J Med Internet Res,2019,21(6):e14165. DOI:10.2196/14165.
[18] Bischoff SC, Escher J, Hébuterne X, et al.ESPEN Practical Guideline: Clinical Nutrition in Inflammatory Bowel Disease[J]. Clin Nutr, 2020;39(3):632-653. DOI:10.1016/j.clnu.2019.11.002.
[19] Raman M, Ghosh S.Diet and Nutrition in IBD-Progress and Gaps[J]. Nutrients,2019,11(8):1740. DOI:10.3390/nu11081740.
[20] Pigneur B, Ruemmele FM.Nutritional Interventions for the Treatment of IBD: Current Evidence and Controversies[J]. Therap Adv Gastroenterol, 2019, 12:1756284819890534. DOI:10.1177/1756284819890534.
[21] The Health on the Net Foundation(HON). Find The Guidelines of the New Certification of Mobile Applications, the Mhoncode[EB/OL].[2020-04-29].https://www.hon.ch/en/guidelines-mhoncode.html.
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