痴呆患者家庭照顾者连带病耻感的研究进展

doi:10.16460/j.issn1008-9969.2020.23.032

摘要/Abstract

摘要： 目的综述痴呆患者家庭照顾者的连带病耻感研究进展,为制定规范、科学的护理服务措施提供理论参考。方法对相关文献资料进行检索,总结归纳国内外关于痴呆患者家庭照顾者连带病耻感测量工具、影响因素及干预措施的研究进展。结果痴呆照顾者连带病耻感相关测评工具为连带病耻感量表、阿尔茨海默氏病的家庭耻辱感量表与家庭耻辱感压力量表;影响因素主要包括人口学因素、疾病因素与社会因素;干预措施主要以3个方面进行,即增加公众与照顾者疾病认知、提高痴呆照顾者照顾技能和减轻痴呆照顾者照顾压力。结论我国缺乏根据国情开发的痴呆家庭照顾者连带病耻感量表,此外,痴呆家庭照顾者连带病耻感的影响因素多,但我国干预方式较单一,未来应借鉴国外相关研究结果,探索出适合我国国情与满足照顾者需求的干预措施是下一步研究的重要方向。

关键词: 痴呆, 家庭照顾者, 连带病耻感, 综述

中图分类号:

R473.74

袁汝娟, 孙欣. 痴呆患者家庭照顾者连带病耻感的研究进展[J]. 护理学报, 2020, 27(23): 32-36.

参考文献

[1] Prince M,Herrera AC,Knapp M,et al.Improving Healthcare for People Living with Dementia:Coverage,Quality and Costs Now and in the Future[J].World Alzheimer Report,2016:21.
[2] Herrmann LK,Welter E,Leverenz J,et al.A Systematic Review of Dementia-related Stigma Research:Can We Move the Stigma Dial?[J].Am J Geriatr Psychiatry,2018,26(3):316-331.DOI:10.1016/j.jagp.2017.09.006.
[3] Werner P,Goldstein D,Buchbinder E.Subjective Experience of Family Stigma as Reported by Children of Alzheimer's Disease Patients[J].Qual Health Res,2010,20(2):159-169.DOI:10.1177/1049732309358330.
[4] Pescosolido BA,Martin JK.The Stigma Complex[J].Annu Rev Sociol,2015,41(1):87-116.DOI:10.1146/annurev-soc-071312-145702.
[5] Liu D,Hinton L,Tran C,et al.Reexamining the Relationships among Dementia,Stigma,and Aging in Immigrant Chinese and Vietnamese Family Caregivers[J].J Cross Cultural Gerontol,2008,23(3):283-299.DOI:10.1007/s10823-008-9075-5.
[6] Xiao LD,Habel L,De Bellis A.Perceived Challenges in Dementia Care by Vietnamese Family Caregivers and Care Workers in South Australia[J].J Cross Cult Gerontol,2015,30(3):333-352.DOI:10.1007/s10823-015-9264-y.
[7] Mamani AWD,Weintraub MJ,Maura J,et al.Stigma,Expressed Emotion,and Quality of Life in Caregivers of Individuals with Dementia[J].Fam Process,2018,57(3):694-706.DOI:10.1111/famp.12325.
[8] Mak WW,Cheung RY.Affiliate Stigma among Caregivers of People with Intellectual Disability or Mental Illness[J].J Appl Res Intellect Disabil,2008,21(6):532-545.
[9] Chang CC,Su JA,Lin CY.Using the Affiliate Stigma Scale with Caregivers of People with Dementia:Psychometric Evaluation[J].Alzheimers Res Ther,2016,8(1):45.DOI:10.1186/s13195-016-0213-y.
[10] Chang CC,Su JA,Tsai CS,et al.Rasch Analysis Suggested Three Unidimensional Domains for Affiliate Stigma Scale:Additional Psychometric Evaluation[J].J Clin Epidemiol,2015,68(6):674-83.DOI:10.1016/j.jclinepi.2015.01.018.
[11] Yun YS,Jaapar SZS,Fadzil NA,et al.Validation of the Malay Version of the Affiliate Stigma Scale among Caregivers of Patients with Mental Illness[J].Malays J Med Sci,2018,25(6):127-136.DOI:10.21315/mjms2018.25.6.13.
[12] Werner P,Goldstein D,Heinik J.Development and validity of the Family Stigma in Alzheimer's Disease Scale (FS-ADS)[J].Alz Dis Assoc Dis,2011,25(1):42-48.DOI:10.1097/WAD.0b013e3181f32594.
[13] Stites SD,Johnson R,Harkinsc K,et al.Identifiable Characteristics and Potentially Malleable Beliefs Predict Stigmatizing Attributions Toward Persons with Alzheimer's Disease Dementia:Results of a Survey of the U.S.General Public[J].Health Commun,2018,33(3):264-273.DOI:10.1080/10410236.2016.1255847.
[14] Kahn PV,Wishart HA,Randolph JS,et al.Caregiver Stigma and Burden in Memor Disorders:An Evaluation of the Effects of Caregiver Type and Gender[J].Curr Gerontol Geriatr Res,2016:1-5.DOI:10.1155/2016/8316045.
[15] Chang CC,Su JA,Chang KC,et al.Development of the Family Stigma Stress Scale(FSSS) for Detecting Stigma Stress in Caregivers of People with Mental Illness[J].Evaluation the Health Professions,2017,42(2):148-168.DOI:10.1177/0163278717745658.
[16] Saffari M,Koenig HG,O'Garo KN,et al.Mediating Effect of Spiritual Coping Strategies and Family Stigma Stress on Caregiving Burden and Mental Health in Caregivers of Persons with Dementia[J].Dementia (London),2018:1-18.DOI:10.1177/1471301218798082.
[17] 王日香,董婷婷.阿尔茨海默病患者家庭照顾者连带病耻感现状及其与照顾者负担的关系[J].中国护理管理杂志,2019,19(3):345-349.DOI:10.3969/j.issn.1672-1756.2019.03.006.
[18] 赵冬梅.痴呆患者家庭照顾者病耻感现状及影响因素分析[J].齐鲁护理杂志,2019,13:58-61.DOI:10.3969/j.issn.1006-7256.2019.13.017.
[19] Abojabel H,Werner P.Exploring Family Stigma among Caregivers of Persons with Alzheimer's Disease:The Experiences of Israeli-arab Caregivers[J].Dementia(London),2019,18(1):391-408.DOI:10.1177/1471301216673920.
[20] Kim S,Mortby ME.Dementia-related Stigma,Cultural Diversity and Help-seeking Intentions:Fingdings from a Population Survey[J].Alzheimers Dement,2016,12(7):691.
[21] Werner P,Heinik J.Stigma by Association and Alzheimer's Disease[J].Aging and Mental Health,2008,12(1):92-99.DOI:10.1080/13607860701616325.
[22] 王婧,罗艳,Lily DX,等.痴呆症病人家庭照顾者社会支持及相关因素研究[J].护理研究,2019,33(14):2460-2463.
[23] Werner P,Abojabel H.Who Internalizes Courtesy Stigma and How? A Study among Israeli Arab Family Caregivers of Persons with Dementia[J].Aging Ment Health,2019,5:1-8.DOI:10.1080/13607863.2019.1584790.
[24] Alzheimer's Research UK.Global Alzheimer's Fears Rise[EB/OL].(2011-08-01)[2020-01-01].http://www.alzheimersresearchuk.org/news-detail/10292/Global-Alzheimers-fears-rise/.
[25] 喻琬童,陈君语,孙小怡,等.北京市中老年人老年痴呆相关知识知晓情况与宣教需求调查[J].中国初级卫生保健,2016,30(10):48-50.DOI:10.3969/j.issn.1001-568X.2016.10.0020.
[26] 范皛,沈军.照顾者对老年痴呆症的认知情况及照顾态度的调查研究[J].检验医学与临床,2016,13(4):547-549.DOI:10.3969/j.issn.1672-9455.2016.04.049.
[27] Latner JD,Stefano EC.Obesity Stigmatization and the Importance of the Research of A.J.Stunkard[J].Curr Obes Rep,2016,5(1):121-125.DOI:10.1007/s 13679-016-0198-7.
[28] Xin Z,Chung JOP,Woo BKP.Exploring the Impact of a Culturally Tailored Short Film in Modifying Dementia Stigma among Chinese Americans:A Pilot Study[J].Acad Psychiatry,2016,40(2):372.DOI:10.1007/s40596-015-0397-7.
[29] Campo-Arias A,Herazo E.The Stigma-discrimination Complex Associated with Mental Disorder as a Risk Factor for Suicide[J].Rev Colomb Psiquiatr,2015,44(4):243-250.DOI:10.1016/j.rcp.2015.04.003.
[30] Wijma EM,Veerbeek MA,Prins M,et al.A Virtual Reality Intervention to Improve the Understanding and Empathy for People with Dementia in Informal Caregivers:Results of a Pilot Study[J].Aging Ment Health,2017(1):1-9.DOI:10.1080/13607863.2017.1348470.
[31] 郭振军,赵玫,吕晓珍,等.痴呆居家照料培训需求现状及影响因素分析[J].中国公共卫生,2016,32(1):108-112.DOI:10.11847/zgggws2016-32-01-32.
[32] 佚名.世界卫生组织iSupport供痴呆症患者护理人员使用的电子规划[EB/OL].(2017-12-01)[2020-01-01].http://www.who.int/mental_health/neurology/dementia/isupport/en/.
[33] Kontos P,Miller KL,Mitchell GJ,et al.Presence Redefined:The Reciprocal Nature of Engagement between Ehder-clowns and Persons with Dementia[J].Dementia,2017,16(1):46-66.DOI:10.1177/1471301215580895.
[34] 武杰,王轶,王志稳.痴呆老人精神行为问题非药物管理指南的系统评价[J].中国循证医学杂志,2016,16(11):1338-1344.DOI:10.7507/1672-2531.20160202.
[35] 毛智慧,李魏,孙晓婷.“喘息服务”对失能老人及其照护者生活质量和照护负担的影响[J].护理研究,2018,32(19):3098-3100.DOI:10.3969/j.issn.1009-6493.2018.19.027.
[36] Gresham M,Heffernan M,Brodaty H.The Going to Stay at Home Program:Combiningdementia Caregiver Training and Residential Respite Care[J].Int Psychogeriatr,2018,30(11):1697-1706.DOI:10.1017/S1041610218000686.
[37] 郭芳.日本小规模多功能服务的喜与忧[J].社会政策研究,2017(6):43-52.DOI:10.19506/j.cnki.cn10-1428/d.2017.06.005.

Metrics

Viewed

Full text

Abstract

Cited

Shared