以质量求发展，以服务铸品牌

护理学报 ›› 2021, Vol. 28 ›› Issue (19): 67-71.doi: 10.16460/j.issn1008-9969.2021.19.067

• 国外护理研究 • 上一篇    下一篇

美国、英国及澳大利亚青少年慢性病患者医疗保健过渡项目比较

蒋鑫鑫1, 单岩2, 贺凤娟3, 苏静4, 高雅靖1, 李雪1, 王红1   

  1. 1.郑州大学 护理与健康学院,河南 郑州 450001;
    2.郑州大学医学院,河南 郑州 450052;
    3.三门峡市中心医院,河南 三门峡 472000;
    4.河南省儿童医院,河南 郑州 450018
  • 收稿日期:2021-03-29 出版日期:2021-10-10 发布日期:2021-11-10
  • 通讯作者: 单岩（1969-）,女,浙江嵊州人,博士,教授,教学管理办公室副主任。E-mail：sy110@sina.com
  • 作者简介:蒋鑫鑫（1995-）,女,河南开封人,本科学历,硕士研究生在读,护士。

Comparison of Health Care Transition Programs for Adolescents with Chronic Disease in the United States, the United Kingdom and Australia

JIANG Xin-xin1, SHAN Yan2, HE Feng-juan3, SU Jing4, GAO Ya-jing1, LI Xue1, WANG Hong1   

  1. 1. School of Nursing and Health, Zhengzhou University, Zhengzhou 450001, China;
    2. School of Medicine,Zhengzhou University, Zhengzhou 450052, China;
    3. Sanmenxia Central Hospital, Sanmenxia 472000, China;
    4. Henan Children's Hospital, Zhengzhou 450018, China
  • Received:2021-03-29 Online:2021-10-10 Published:2021-11-10

PDF (PC)

318

赞

摘要： 目的 比较分析美国、英国及澳大利亚开展的青少年慢性病患者医疗保健过渡项目,总结其可借鉴的经验和做法。方法 采用同类横向比较的方法,从各国医疗过渡项目的概述、具体内容、各阶段任务及评价方面进行定性比较分析。结果 各国共性经验包括：定期并持续评估青少年慢性病患者对医疗过渡、健康状况的认知、自我管理知识及技能掌握等情况,并根据评估结果进行针对性问题解决及目标计划设定;利用信息网络平台为青少年患者及其父母/照顾者提供丰富信息支持;为青少年患者及其父母/照顾者提供咨询服务,鼓励青少年患者独立参与医疗决策及咨询;针对青少年患者的年龄及发展特点,分阶段实施医疗过渡项目。结论 我国可借鉴各国医疗过渡项目经验,建立以问题和需求为导向的医疗过渡服务体系,制定阶段性医疗过渡计划,利用信息化网络平台为青少年患者及其父母/照顾者提供信息支持、咨询服务及医疗转接等医疗过渡内容。

关键词: 青少年, 慢性病, 医疗保健过渡项目, 比较研究

Abstract: Objective To compare and summarize the experience of health care transition programs for adolescent patients with chronic diseases in the United States, the United Kingdom and Australia. Methods Qualitative comparative analysis was conducted and the overview, specific content, tasks of each stage and evaluation of health care transition programs in different countries was analyzed by adopting the method of similar horizontal comparison. Results Common experience in various countries included: periodical and continuous assessment of adolescent patients with chronic diseases on perception of health care transition and health status, self-management knowledge and skills, etc.; targeted problems-solving and goals-planning according to the assessment; rich information support for adolescent patients and their parents/caregivers by information network platform; counselling services for adolescent patients and their parents/caregivers, and encouraging their independent participation in medical decision-making and counselling; phased implementation of health care transition program according to the age and developmental characteristics of adolescent patients. Conclusion We can learn from the experience of transition programs in other countries, establish a problem- and need-oriented transition service system for a phased health care plan, and information support, counseling service and medical transfer service for adolescent patients and their parents/caregivers.

Key words: adolescent, chronic disease, health care transition program, comparative study

中图分类号: 

  • R473.2
[1] Pai AL, Schwartz LA.Introduction to the Special Section: Health Care Transitions of Adolescents and Young Adults with Pediatric Chronic Conditions[J].J Pediatr Psychol, 2011,36(2):129-133. DOI:10.1093/jpepsy/jsq100.
[2] Zhou H, Roberts P, Dhaliwal S, et al.Transitioning Adolescent and Young Adults with Chronic Disease and/or Disabilities from Paediatric to Adult Care Services-an Integrative Review[J]. J Clin Nurs, 2016,25(21/22):3113-3130. DOI: 10.1111/jocn.13326.
[3] Varty M, Popejoy LL.A Systematic Review of Transition Readiness in Youth with Chronic Disease[J].West J Nurs Res, 2020,42(7):554-566. DOI:10.1177/0193945919875470.
[4] 蒋鑫鑫,单岩,周越,等. 国外青少年慢性病患者过渡期准备的研究进展[J]. 解放军护理杂志,2020,37(11):55-58. DOI: 10.3870/j.issn.1001-4152.2020.12.110.
[5] Sheng N, Ma J, Ding W, et al.Family Management Affecting Transition Readiness and Quality of Life of Chinese Children and Young People with Chronic Diseases[J]. J Child Health Care, 2018,22(3):470-485.DOI:10.1177/1367493517753712.
[6] Jones MR, Hooper TJ, Cuomo C, et al.Evaluation of A Health Care Transition Improvement Process in Seven Large Health Care Systems[J]. J Pediatr Nurs, 2019(47):44-50. DOI:10.1016/j.pedn.2019.04.007.
[7] Nagra A, Mcginnity PM, Davis N, et al.Implementing Transition: Ready Steady Go[J]. Arch Dis Child Educ Pract Ed, 2015,100(6):313-320.DOI:10.1136/archdischild-2014-307423.
[8] Kennedy A, Sloman F, Douglass JA, et al.Young People with Chronic Illness: The Approach to Transition[J]. Intern Med J, 2007,37(8):555-560.DOI:10.1111/j.1445-5994.2007.01440.x.
[9] Cooley WC, Sagerman PJ.Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home[J]. Pediatrics, 2011,128(1):182-200. DOI:10.1542/peds.2011-0969.
[10] Healthy People2030. Increase the Proportion of Adolescents Who Get Support for Their Transition to Adult Health Care-AH-R01[EB/OL]. (2020-8-31) [2020-11-29]. https://health.gov/healthypeople/objectives-and-data/browse-objectives/adolescents.
[11] McManus MA, Pollack LR, Cooley WC, et al. Current Status of Transition Preparation Among Youth with Special Needs in the United States[J]. Pediatrics, 2013,131(6): 1090-1097. DOI: 10.1542/peds.2012-3050.
[12] Lebrun-Harris LA, McManus MA, Ilango SM, et al. Transition Planning Among US Youth With and Without Special Health Care Needs[J].Pediatrics, 2018,142(4):e20180194. DOI:10.1542/peds.2018-0194.
[13] Association For Young People's Health.Key Data on Young People2019[EB/OL]. (2019-09-17) [2020-11-29]. https://www.youngpeopleshealth.org.uk/resources.
[14] Signorini G, Singh SP, Marsanic VB, et al.The Interface between Child/Adolescent and Adult Mental Health Services: Results from A European 28-Country Survey[J]. Eur Child Adolesc Psychiatry,2018, 27(4):501-511.DOI:10.1007/s00787-018-1112-5.
[15] Australian Institute of Health and Welfare. Australis's Children: in Brief[EB/OL]. (2019-12-17)[2020-11-29]. https://www.aihw.gov.au/reports/children-youth/australias-children-in-brief.
[16] Steinbeck KS, Brodie L, Towns SJ.Transition Care for Young People with Chronic Illness[J]. Int J Adolesc Med Health, 2007,19(3):295-303. DOI:10.1515/ijamh.2007.19.3.295.
[17] Australian Commission on Safety and Quality in Health Care. Transition Support Service, the Royal Children's Hospital Melbourne-NSQHS Standards Exemplar Practice Submission[EB/OL].(2020-05-20)[2021-07-11].https://www.safetyandquality.gov.au/publications-and-resources/resource-library/transition-support-service-royal-childrens-hospital-melbourne-nsqhs-standards-exemplar-practice-submission.
[18] Kosola S, Culnane E, Loftus H, et al.Bridge Study Protocol: an International, Observational Cohort Study on the Transition of Healthcare for Adolescents with Chronic Conditions[J]. BMJ Open, 2021,11(6):e48340. DOI:10.1136/bmjopen-2020-048340.
[19] White PH, Cooley WC.Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home[J]. Pediatrics,2018,142(5):e20182587.DOI:10.1542/peds.2018-2587.
[20] Grant C,Pan J.A Comparison of Five Transition Programmes for Youth with Chronic Illness in Canada[J]. Child Care Health Dev,2011,37(6):815-820.DOI:10.1111/j.1365-2214.2011.01322.x.
[21] Canadian Pediatric Society.Transition to Adult Care for Youth with Special Health Care Needs[J]. Paediatr Child Health, 2007,12(9):785-793. DOI:10.1093/pch/12.9.785.
[22] Rosen DS, Blum RW, Britto M, et al.Transition to Adult Health Care for Adolescents and Young Adults with Chronic Conditions: Position Paper of the Society for Adolescent Medicine[J]. J Adolesc Health, 2003,33(4):309-311. DOI:10.1016/s1054-139x(03)00208-8.
[23] Campbell F, Biggs K, Aldiss SK, et al.Transition of Care for Adolescents from Paediatric Services to Adult Health Services[J]. Cochrane Database Syst Rev, 2016(4):D9794. DOI:10.1002/14651858.CD009794.pub2.
[24] 徐毅超,周璇,杜青.儿童疾病与父母过度保护问题现状[J]. 中华实用儿科临床杂志, 2016,31(19):1515-1517.
[25] 陈妍君,李杨.青少年慢性病患者自我管理研究进展[J]. 中国护理管理, 2018, 18(1):130-133.DOI:10.3969/j.issn.1672-1756.2018.01.031
[26] 杨巾夏,姚文英,王新. 对学龄期哮喘患儿实施儿童医疗辅助服务的效果观察[J]. 护理学报, 2021,28(6):71-75. DOI:10.16460/j.issn1008-9969.2021.06.071.
[27] Wong LH, Chan FW, Wong FY, et al.Transition Care for Adolescents and Families with Chronic Illnesses[J].J Adolesc Health, 2010,47(6):540-546.DOI:10.1016/j.jadohealth.2010.04.002.
[28] Ma J, Yu Q, Ding W, et al.Psychometric Properties of the ‘Self-Management and Transition to Adulthood with R(x) = Treatment Questionnaire' in Chinese Children and Young People with Chronic Diseases[J]. Int J Nurs Pract, 2020: e12880. DOI:10.1111/ijn.12880.
[29] Huang H, Wang Y, Mao X, et al.Translation and Validation of TRANSITION-Q for Chinese Pediatric Cancer Survivors[J]. J Pediatr Nurs, 2021,61:130-135. DOI:10.1016/j.pedn.2021.05.009.
[30] 中华人民共和国国家卫生健康委员会. 关于引发加强儿童医疗卫生服务改革与发展意见的通知[EB/OL]. (2016-05-18) [2020-12-22]. http://www.nhc.gov.cn/cms-search/xxgk/getManuscriptXxgk.htm?id=d8c3d4f7bcda487fb145fc
95fac9c8b3.
[31] 刘震,王文桥. 基于区块链的医疗信息共享平台设计与实现[J]. 医疗卫生装备, 2020,41(8):36-39. DOI:10.19745/j.1003-8868.2020178.
[1] 李惠平, 李立华, 崔虹, 郭金花, 邵华, 关燕霞, 谢美香. 双相障碍青少年患者父母疾病家庭负担现状及影响因素分析[J]. 护理学报, 2021, 28(18): 70-73.
[2] 成荫, 张燕红, 朱姝芹, 王兆芹. 计算机认知行为疗法降低青少年抑郁发生的Meta分析[J]. 护理学报, 2021, 28(17): 46-52.
[3] 徐爱红. 老年慢性病患者基于保护动机理论护理干预的效果观察[J]. 护理学报, 2021, 28(16): 47-51.
[4] 谢小敏, 李亚莉, 梁亚红, 冯蓓, 林燕, 江逊. 功能失调性态度在父母教养方式与青少年抑郁症状间的中介效应[J]. 护理学报, 2021, 28(13): 52-57.
[5] 黄继云, 郑元. 正念干预对青少年特发性脊柱侧凸手术患者呼吸训练依从性及肺功能的影响[J]. 护理学报, 2021, 28(13): 65-69.
[6] 王鹏程, 孟爱凤, 智晓旭, 汤琳, 路莉静, 浦亚楼. 青少年癌症患者生活体验质性研究的Meta整合[J]. 护理学报, 2020, 27(10): 43-48.
[7] 刘玉琦, 张毅俊, 陈凤新, 欧阳玲, 罗鲁克, 叶亮, 陈翔东. 眼科慢性病健康管理智能化软件系统的研发及应用[J]. 护理学报, 2019, 26(5): 72-74.
[8] 杨心悦, 沈琦, 谢芳芳, 易荣, 杨晨, 王冬华. 381例社区老年慢性病患者自主性感知现状及影响因素分析[J]. 护理学报, 2019, 26(3): 46-50.
[9] 栗娟, 陈秀荣. 1型糖尿病儿童/青少年父母低血糖恐惧感影响因素研究进展[J]. 护理学报, 2019, 26(21): 31-35.
[10] 程蕾, 连冬梅. 慢性病儿童疲乏评估工具的研究进展[J]. 护理学报, 2019, 26(2): 30-33.
[11] 李雪, 任桂华, 张瑞, 宁佩, 李媛, 王卉, 孟庆慧. 中美护理人际沟通教材的比较研究[J]. 护理学报, 2019, 26(16): 13-16.
[12] 喻雅真,刘海琼,李丹,麦静怡,戴丽,王冬华. 407名社区老年慢性病患者健康赋权与述情障碍相关性研究[J]. 护理学报, 2018, 25(5): 71-74.
[13] 杨琳娟,吴捷. 角膜塑形镜对青少年睡眠和自信心影响[J]. 护理学报, 2018, 25(5): 48-51.
[14] 卞薇,谭明琼,温健琳,苏君. 在线患者社会网络在慢性病患者健康行为促进领域中的应用研究进展[J]. 护理学报, 2018, 25(3): 37-41.
[15] 王蕊琪,周郁秋,贾红红. 慢性病患者就医行为影响因素研究进展[J]. 护理学报, 2018, 25(3): 24-28.
Viewed
Full text


Abstract

Cited
  Shared   
[1] 何俊, 杨小路, 夏晗月, 向新元, 韩未来, 王冬华. 693名二级医院临床护士道德勇气现状及影响因素分析[J]. 护理学报, 2021, 28(18): 41 -45 .
[2] 何泳思, 方帆, 陈瑜, 王晶, 肖菊兰. 高职助产护生核心能力指标体系的构建[J]. 护理学报, 2021, 28(19): 1 -7 .
[3] 胡惠菊, 韩静, 唐启群, 成杰, 李慧源. Morse跌倒评估量表与STEADI跌倒风险自评量表在养老机构老年人中的应用比较[J]. 护理学报, 2021, 28(19): 8 -12 .
[4] 同赟洁, 刘艳梅, 吕梅芬, 卢丹丹, 谭诗韵. 恢复期脑卒中患者自我接纳现状及影响因素分析[J]. 护理学报, 2021, 28(19): 13 -16 .
[5] 张斯清, 王玉玲, 张越, 孙雨晴, 彭胜, 蔡天蕊. 护士责任知觉在管理关怀感知与主动行为间的中介效应分析[J]. 护理学报, 2021, 28(19): 17 -21 .
[6] 乔桂圆, 杨芬. 基于中医特色护理硕士专业学位研究生培养方案的构建[J]. 护理学报, 2021, 28(19): 22 -25 .
[7] 梁潇, 高文慧, 李思颉. 后疫情时代急诊科脑卒中绿色通道管理实践[J]. 护理学报, 2021, 28(19): 26 -29 .
[8] 王李胜, 张仲华, 杨建国, 童辉. 血液净化中心血管通路护士岗位设立与实践[J]. 护理学报, 2021, 28(19): 30 -32 .
[9] 刘珊珊, 王颖, 贾守梅, 邓蓉, 蒋艳, 陈芳, 罗云婷. 慢性肝病住院患者营养筛查评估与管理循证实践[J]. 护理学报, 2021, 28(19): 33 -38 .
[10] 赵振华, 邢星敏, 冯波, 俞琳, 沈萍, 董大伟, 仇丽华. 成人危重患者低体温复温管理的证据总结[J]. 护理学报, 2021, 28(19): 39 -43 .