以质量求发展,以服务铸品牌

Journal of Nursing ›› 2021, Vol. 28 ›› Issue (2): 52-57.doi: 10.16460/j.issn1008-9969.2021.02.052

Previous Articles     Next Articles

Current Status of Grief of Primary Caregivers of Dementia Patients and Its Influence Factors: A 164-case Study

LI Ming-shi, DENG Xiao-lan, GE Zhao-xia   

  1. Cadre Health Center, Nanjing Drum Tower Hospital, Medical School, the Affiliated Hospital of Nanjing University, Nanjing 210008, China
  • Received:2020-01-17 Online:2021-01-25 Published:2021-03-12

Abstract: Objective To explore the current status of grief among the primary caregivers of Alzheimer′s patients and analyze its influence factors. Methods By convenience sampling method, primary caregivers of Alzheimer′s patients treated in the geriatric ward of Drum Tower Hospital from October 2018 to September 2019, were recruited and investigated by using Caregiver Grief Scale (simplified version), General Self-efficacy Scale, and Social Support Rating Scale. Multiple linear regression was used to explore the factors influencing the grief among the primary caregivers of elderly dementia patients. Results The total score of grief among the primary caregivers of 164 elderly patients with dementia was 63.74±10.75. Multiple linear regression analysis showed that gender, age, education background, self-efficacy, social support, and the severity of disease and course of disease were factors influencing grief among the primary caregivers (P<0.05), accounting for 62.3% of the total variation. Conclusion The grief of primary caregivers of elderly dementia patients is in a high level. Gender, age, education level, self-efficacy, social support, severity and course of disease are the primary influencing factors of the caregivers′ grief. Nursing staff should take practical measures to improve the self-efficacy and social support for caregivers of Alzheimer′s patients, thus to alleviate their grief.

Key words: Alzheimer's disease, primary caregiver, grief, social support, self-efficacy

CLC Number: 

  • R473.59
[1] Winblad B, Amouyel P,Andrieu S,et al.Defeating Alzheimer's Disease and Other Dementias: A Priority for European Science and Society[J]. Lancet Neurol, 2016, 15(5):455-532. DOI:10.1016/S1474-4422(16)00062-4.
[2] 蒋芬,王卫红,王庆妍,等.老年期痴呆患者照顾者的照顾感受[J].中国老年学杂志, 2014,34(3):759-762. DOI:10.3969/j.issn.1005-9202.2014.03.089.
[3] 柯淑芬,李红.老年痴呆照护机构生活环境评估量表的研究进展[J].中华护理杂志,2014, 49(2):211-215. DOI:10.3761/j.issn.0254-1769.2014.02.022.
[4] 刘晓双,周晓美,柳韦华.2000-2015 年我国老年痴呆患者生活质量或照顾者负担研究文献计量分析[J].护理学报,2016,23(5):35-37. DOI:10.16460/j.issn1008-9969.2016.05.035.
[5] 周滢,李峥.老年痴呆照顾者哀伤的研究进展[J]. 中华护理杂志,2014, 49(1):488-492. DOI:10.3761/j.jssn.0254-1769.2018.04.022.
[6] Blandin K,Pepin R.Dementia Grief:A Theoretical Model of a Unique Grief Experience[J]. Dementia,2015,16(1):1-4. DOI:10.1177/1471301215581081.
[7] Garand L, Lingler JH, Deardorf KE, et al.Anticipatory Grief in New Family Caregivers of Persons with Mild Cognitive Impairment and Dementia[J]. Alzheimer Dis Assoc Disord,2012,26(2):159-165. DOI:10.1097/WAD.0b013e31822f9051.
[8] 陆蓉,张廉,吴瑞枝. 阿尔茨海默病与脑血管性痴呆患者认知及精神行为特征比较[J]. 中国临床康复, 2004, 8(1):190-191. DOI:10.3321/j.issn:1673-8225.2004.01.013.
[9] 钱时兴,肖世富,张新凯,等.日常生活功能量表评定阿尔茨海默病患者日常生活功能的信度与效度及其应用[J]. 上海精神医学, 2010, 22(1):22-25. DOI:10.3969/j.issn.1002-0829.2010.01.006.
[10] Marwit SJ, Meuser TM.Development and Initial Validation of an Inventory to Assess Grief in Caregivers of Persons with Alzheimer's Disease[J]. Gerontologist, 2002,42(6):751-765. DOI:10.1093/geront/42.6.751.
[11] Marwit SJ, Meuser TM.Development of a Short form Inventory to Assess Grief in Caregivers of Dementia Patients[J].Death Stud,2005,29(3):191-205. DOI:10.1080/07481180590916335.
[12] 叶玉平,高钰琳,朱嘉钰,等. 老年痴呆病人照顾者悲伤量表信度和效度评定[J]. 护理研究,2008,22(4A):872-873. DOI:10.3969/j.issn.1009-6493.2008.10.011.
[13] 王才康,胡中锋,刘勇.一般自我效能感量表的信度和效度研究[J].应用心理学,2001,7(1):37-40. DOI:10.3969/j.issn.1006-6020.2001.01.007.
[14] 肖水源. 《社会支持评定量表》的理论基础与研究应用[J].临床精神医学杂志,1994,4(2):98-100.
[15] 解亚宁. 简易应对方式量表信度和效度的初步研究[J].中国临床心理杂志,1998,6(2):114-115.
[16] 张婷婷,刘春娥,尹安春. 161 例阿尔茨海默病患者主要照顾者的照顾负担与悲伤情绪的相关性分析[J].护理学报,2019,26(11):65-68. DOI:10.16460/j.issn1008-9969.2019.11.065.
[17] 蒋和娣,蒋维连,肖艳林,等.出院后继续感恩情绪干预对脑肿瘤术后患者配偶远期积极体验及照顾负担的影响[J].中华现代护理杂志,2017, 23(19):2541-2544. DOI:10.3760/cma.j.issn.1674-2907.2017.19.023.
[18] Fauth EB, Gibbon SA.Which Behavioral and Psychological Symptoms of Dementia Are the Most Problematic Variability by Prevalence, Intensity, Distress Ratings, and Associations with Caregiver Depressive Symptoms[J].Int J Geriatric Psychiatry,2014,29(3):263-271. DOI:10.1002/gps.4002.
[19] Huang SS, Lee MC, Liao YC,et al.Caregiver Burden Associated with Behavioral and Psychological Symptoms of Dementia(BPSD) in Taiwanese Elderly[J].Arch Gerontol Geriat,2012,55(1):55-59. DOI:10.1016/j.archger.2011.04.009.
[20] Arruda EH, Paun O.Dementia Caregiver Grief and Bereavement: an Integrative Review[J]. West J Nurs Res,2017,39(6):825-851. DOI:10.1177/0193945916658881.
[21] Passoni S, Toraldo A, Villa B, et al.Prolonged Grief in Caregivers of Community-dwelling Dementia Patients[J]. Am J Alzheimers Dis Other Demen,2015, 30(2):192-200. DOI:10.1177/1533317514542643.
[22] Liew TM.Applicability of the Pre-death Grief Concept to Dementia Family Caregivers in Asia[J]. Int J Geriatr Psychiatry,2016,31(7):749-754. DOI:10.1002/gps.4387.
[23] 许丽华,张敏,闻子叶.老年痴呆患者家庭照顾者负担与压力现状及影响因素[J].中国老年学杂志, 2016, 36(12):3025-3029. DOI:10.3969/j.issn.1005-9202.2016.12.095.
[24] 刘莉莉,林平,赵振娟.自我效能、社会支持及应对方式对急性心肌梗死患者心理弹性影响的路径分析[J].中华护理杂志,2016, 51(1):21-25. DOI:10.3761/j.issn.0254-1769.2016.01.004.
[25] Meichsner F, Wilz G.Dementia Caregivers' Coping with Predeath Grief: Effects of a CBT-based Intervention[J]. Aging Ment Health,2018,22(2):218-225. DOI:10.1080/13607863.2016.1247428.
[26] 任雅欣,周英,黄美凌,等.护士心理弹性状况及其影响因素[J].中华行为医学与脑科学杂志,2014, 23(3):258-260. DOI:10.3760/cma.j.issn.1674-6554.2014.03.020.
[27] Ott CH, Kelber ST, Blaylock M.“Easing the Way” for Spouse Caregivers of Individuals with Dementia:A Pilot Feasibility Study of a Grief Intervention[J]. Res Gerontol Nurs,2010,3(2):89-99. DOI:10.3928/19404921-20100302-01.
[28] 蒋平静,谭小林,黄杰,等.影响阿尔茨海默病患者家庭照料者生活质量的相关因素分析[J].重庆医学, 2015,44(30):4201-4203. DOI:10.3969/j.issn.1671-8348.2015.30.009.
[29] 王庆妍,绳宇.影响中国老年期痴呆患者家庭利用社会资源的文化因素[J].中国老年学杂志,2019,39(5):1259-1261. DOI:10.3969/j.issn.1005-9202.2019.05.073.
[1] WANG Jiang-ning, SONG Mei. Emotion Management Difference between Breast Cancer Patients and Healthy Females in Community [J]. Journal of Nursing, 2020, 27(22): 52-56.
[2] LI Dong, YU Li-li, ZHANG Wei, WANG Jing, LI Li. Reliability and Validity of Medical Outcomes Study Social Support Survey (Chinese Version) in Infertile Female Patients [J]. Journal of Nursing, 2020, 27(20): 66-70.
[3] . Mediating Effect of General Self-efficacy on Meaning in Life and Prosocial Behaviors of Nursing College and Undergraduate Students [J]. Journal of Nursing, 2020, 27(19): 47-51.
[4] HUANG Jie-ying, WANG Jing, CHEN Yu. Status of Autonomous Learning Ability of College Nursing Students and Its Influence Factors:A 1,008-case Study [J]. Journal of Nursing, 2020, 27(15): 1-6.
[5] CHENG Di, HU De-ying, GUO Xiao, DAI Yi, SUN Li. Effect of Ballint Group on Anxiety, Depression and Self-efficacy of Nurses Experiencing Patient Suicide [J]. Journal of Nursing, 2020, 27(15): 69-73.
[6] ZHU Yi-fan, CHEN Zhi-qian, GUO Qiao-hong, SU Ya-li. Current Status of Dignity of 196 Breast Cancer Women Receiving Chemotherapy and Its Influence Factors [J]. Journal of Nursing, 2020, 27(12): 33-37.
[7] GAO Ya-qin, LI Yu-hong, MU Ting-yu. Mediating Effect of Career Decision-making Self-efficacy on Psychological Capital and Professional Identity of Nursing Undergraduates [J]. Journal of Nursing, 2019, 26(7): 40-44.
[8] YE Zi-wen, ZHWN Li, ZHU Mu-lan, HU Ting, WANG Hui-zhen. Stigma of Patients with Preventive Ostomy and Its Influence Factors: A 220-case Study [J]. Journal of Nursing, 2019, 26(3): 40-45.
[9] XIE Wen-jun, ZHANG Shuai, LIU Yi, ZHANG Hui-juan, LIU Gui-ying, WANG Bei, LIU Jie, LIU Yu-qiu, GUAN Wei. Perceived Social Support and Coping Style as Mediators between Resilience and Post-traumatic Growth among Patients with Hematopoietic Stem Cell Transplant [J]. Journal of Nursing, 2019, 26(3): 73-78.
[10] WU Yan, ZHAO Guo-yan, WANG Yi. Association between Anticipatory Grief and Locus of Control in Patients with Locally Advanced Cervical Cancer [J]. Journal of Nursing, 2019, 26(23): 71-74.
[11] WEI Juan, LIU Jie-ying, Cui De-zhen, WU Yan-ping. Contraceptive Self-efficacy of Unmarried Women with Unplanned Pregnancy and Its Influence Factors:A 216-case Study [J]. Journal of Nursing, 2019, 26(22): 33-37.
[12] HUA Li-fang, ZHA Chun-hua, GE Yan-qian. Early Decision-making Self-efficacy of 185 Legal Representative of Patients with Severe Craniocerebral Trauma and Its Influence Factors [J]. Journal of Nursing, 2019, 26(22): 38-42.
[13] JIANG Qin, ZHANG Cai-xia, MENG Ying, CHEN Mei. Perceived Vulnerability of 169 Parents of Children with Congenital Heart Disease and Its Influence Factors [J]. Journal of Nursing, 2019, 26(20): 33-37.
[14] KANG Xiao-fei, HAN Xin-mei, LI Guo-peng, FANG Mei. Psychological Distress of 331 Patient's Spouses Firstly with in vitro Fertilization and Embryo Transfer and Its Influence Factors [J]. Journal of Nursing, 2019, 26(2): 45-50.
[15] LIU Ting, HAN Ming-hui, LIANG Jun-li, LI Xin-sheng, SU Gui-xia. Effect of Mindfulness-based Stress Reduction Therapy on Self-efficacy and Mindfulness Level of Lung Cancer Patients Treated with Chemotherapy [J]. Journal of Nursing, 2019, 26(2): 66-70.
Viewed
Full text


Abstract

Cited

  Shared   
[1] JIA Li-li, ZHANG Guo-zeng, YUE Li-xia, ZHU Kang-ning, WANG Zhi-xia, WANG Fei-jie. Qualitative Research on Home Life Experience of Patients after Temporary Stoma Reversal[J]. Journal of Nursing, 2021, 28(2): 1 -4 .
[2] CHENG Xue, XU Cui-ping, ZHANG Min, WANG Jun-zhi, CHU Liang-liang, WU Yu, DING Kai-wen, LI Chang-e. Construction of Painless Labor Intention Self-rating Scale Based on Theory of Planned Behavior[J]. Journal of Nursing, 2021, 28(2): 5 -9 .
[3] LIU Xiao-li, WU Xiao-zhou, LI Shuo, YANG Guo-yi, WANG Ling, LIU Shu-jia. Construction of Stratified Training System for Head Nurse Based on Post Competency[J]. Journal of Nursing, 2021, 28(2): 10 -15 .
[4] DU Xiao-liang, HU Na, WANG Qian-yun, LIU Qian, YU Xing, YUE Xiao. Family Integrated Shift in Neurological Department[J]. Journal of Nursing, 2021, 28(2): 16 -19 .
[5] ZHAO Ke-di, WANG Ran, ZHANG Ying, WU Lan, HOU Yuan-zheng, TANG Zhe, LIU Ting. Improved SBAR-based Nursing Transfer Checklist in Shift for Patients Receiving MRI-guided Brain Tumor Resection[J]. Journal of Nursing, 2021, 28(2): 20 -23 .
[6] . [J]. Journal of Nursing, 2021, 28(2): 24 -27 .
[7] . [J]. Journal of Nursing, 2021, 28(2): 28 -30 .
[8] WANG Hui, TONG Xu, LI Ling. Self-management of Patients with Chronic Heart Failure: A Qualitative Meta-integration[J]. Journal of Nursing, 2021, 28(2): 31 -36 .
[9] GUO Han-hua, CHEN Ming-gui, KONG Li-li, ZHANG Xiao-xuan. Evidence-based Practice of Best Replacement of Catheter for Arterial Pressure Measuring of Critically-ill Patients[J]. Journal of Nursing, 2021, 28(2): 37 -41 .
[10] . [J]. Journal of Nursing, 2021, 28(2): 42 -46 .