以质量求发展,以服务铸品牌

Journal of Nursing ›› 2023, Vol. 30 ›› Issue (15): 6-10.doi: 10.16460/j.issn1008-9969.2023.15.006

Previous Articles     Next Articles

Construction of cultural sensitivity-based palliative care program for pediatric cancer patients

SUN Li, HUANG Jia-li, HU Cheng-wen, GU Dao-qin, WEI Qi, FANG Min, LIU Qun-hui, XU Bao-hui   

  1. Anhui Cancer Hospital, Hefei 230001, China
  • Received:2022-11-18 Online:2023-08-10 Published:2023-09-08

Abstract: Objective To construct a cultural sensitivity-based palliative care program for children with cancer, and to provide reference for the development of palliative care for children with cancer. Methods Through literature content analysis, a draft palliative care plan for pediatric cancer patients based on cultural sensitivity was formulated. Twenty experts were invited to carry out 2 rounds of expert correspondence for the further revision of the program. Results In the second round of expert correspondence, the expert judgment basis, expert familiarity, and expert authority coefficient were 0.95, 0.89, and 0.93, respectively. The final version of the palliative care program for children with cancer consisted of 5 first-level indicators (co-decision-making, symptom management, hospice education for children, supportive care for caregivers, and continuum of care), 17 second-level indicators, and 42 third-level indicators, The importance score of each item was all >3.5; the coefficient of variation 0~0.20, and the expert Kendall’s harmony coefficient (W) 0.093 (P<0.001). Conclusion The palliative care program for children with cancer based on cultural sensitivity has good scientific and clinical significance, showing full respects for children and their families with different cultural background. It can provide reference for palliative care for children with cancer.

Key words: palliative care, end of life care, hospice care, children, culture, multi-cultural nursing, Delphi method

CLC Number: 

  • R473.72
[1] Stefan F, Eduardo B.Delivering pediatric palliative care: from denial, palliphobia, pallilalia to palliactive[J]. Children, 2018, 5(9):120-121. DOI:10.3390/children5090120.
[2] Kassebaum N, Kyu HH, Zoeckler L,et al.Child and adolescent health from 1990 to 2015: findings from the global burden of diseases, injuries, and risk factors 2015 study[J]. Jama Pediatr, 2017, 171(6): 573-592. DOI:10.1001/jamapediatrics.2017.0250.
[3] Connor SR, Downing J, Marston J.Estimating the global need for palliative care for children: a cross-sectional analysis[J]. J Pain Symptom Manage, 2017, 53(2):171-177. DOI:10.1016/j.jpainsymman.2016.08.020.
[4] Carey SM, Cosgrove JF.Cultural issues surrounding end-of-life care[J]. Curr Anaesth Crit Care, 2006, 17(5):263-270. DOI:10.1016/j.cacc.2006.10.002.
[5] 周英华,庄严.多元文化对儿童安宁疗护实践的影响[J].医学与哲学, 2021, 42(19):49-54. DOI:10.12014/j.issn.1002-0772.2021.19.11.
[6] Browning DM, Solomon MZ.Initiative for Pediatric Palliative Care (IPPC) Investigator Team. The initiative for pediatric palliative care: an interdisciplinary educational approach for healthcare professionals[J]. J Pediatr Nurs, 2005,20(5):326-334. DOI:10.1016/j.pedn.2005.03.004.
[7] Wiener L, McConnell DG, Latella L, et al. Cultural and religious considerations in pediatric palliative care[J]. Palliat Support Care, 2013, 11(1):47-67.DOI:10.1017/S1478951511001027.
[8] 石海宁,陈玲,周丽静,等.乳腺癌术后患者快速康复护理敏感质量指标体系的构建[J].护理学报, 2022,29(15):14-18. DOI: 10.16460/j.issn1008-9969.2022.15.014.
[9] 陈玉平,彭刚艺,张莉,等.临床感控专科护士胜任力评价指标体系的构建[J].护理学报,2023, 30(6):15-21.DOI:10.16460/j.issn1008-9969.2023.06.015.
[10] 刘砚燕,袁长蓉. 癌症照护研究中的中国文化元素及启示[J].护理学杂志,2012,27(4):93-96. DOI:10.3970/HLXZZ.2012.04.093.
[11] Groh G, Borasio GD, Nickolay C, et al.Specialized pedi-atric palliative home care: a prospective evaluation[J]. J Palliat Med,2013, 16(12):1588-1594. DOI:10.1089/jpm.2013.0129.
[12] 刘群慧,方敏,黄洁,等.家长参与的绘画疗法在白血病患儿中的应用研究[J].中华护理杂志, 2023, 58(8):907-914. DOI:10.3761/j.issn.0254-1769.2023.08.002
[13] 孙丽,胡成文,刘群慧,等.1例急性白血病患儿的安宁疗护实践[J].中华护理杂志,2022,57(8):992-996. DOI:10.3761/j.issn.0254-1769.2022.08.015.
[1] CAI Wen-wen, ZHANG Xing-xing, YE Min-shan, LUO Yan-xia, RUAN Wei-qing, Li Jia. Construction of nursing sensitive quality indicator system for patients undergoing colonoscopy based on structure-process-outcome model [J]. Journal of Nursing, 2023, 30(6): 1-6.
[2] QIN Zhi-yuan, WANG Xiang-rong, ZHENG San-yi, LI Xiao-wei. Visualization analysis of hotspots of death education for nursing students at home and abroad [J]. Journal of Nursing, 2023, 30(4): 6-10.
[3] LI Jia, LIANG Jia-yi, FENG Ru-zhi, GAO Yu-lin. Construction of evaluation index system for core competence of public health nurses [J]. Journal of Nursing, 2023, 30(4): 16-22.
[4] LIU Wei, LI Yu-ling, HAN Qing-hua, LIN Yan-li. Construction of peer support education program for nursing students based on social learning theory [J]. Journal of Nursing, 2023, 30(3): 16-19.
[5] TIAN Tian, LI Zhuan-zhen, DU Fang-fang, ZHU Yong-yan, LI Wei-li, WAN Fei-fei. Construction of nursing safety training system for new nurses based on Transition Shock Theory [J]. Journal of Nursing, 2023, 30(3): 35-39.
[6] MIAO Kang-kang,CEHN Qin. Translation and psychometric validation of Children’s Environmental Health Questionnaires [J]. Journal of Nursing, 2023, 30(2): 17-22.
[7] LI Pu, WANG Mei, YU Li, LIU Min, LI Ping, ZHANG Hong,CHEN Yu, HU Yan, HU Shao-hua. Best evidence summary for early mobilization in children with severe neurological impairment [J]. Journal of Nursing, 2023, 30(2): 48-53.
[8] FANG Jia, XU Li-ling, LIU Chun-qin, LIU Xia, WANG Mei-xiang, LIU Qiong, HUANG Hai-ying, XIAO Xin-Hua, LIN Yan. Contemporaneous symptom networks in children with acute leukemia during chemotherapy: a network analysis [J]. Journal of Nursing, 2023, 30(16): 1-6.
[9] CAI Qian, LUO Wen, SUN Xin-xin, CHEN Rong, SONG Hui-zi, CAI Ye-peng, ZHANG Yi-ran, LIAO Yue-xia. Translation of Self-regulation of Eating Questionnaire and its reliability and validity in preschool children [J]. Journal of Nursing, 2023, 30(15): 11-15.
[10] SU Ting, WANG Ning, WANG Li-jie, LI Xi-ran, WU Xiao-fen, WANG Shuang. Construction of core competency index system of dementia care workers [J]. Journal of Nursing, 2023, 30(14): 13-17.
[11] HUANG Yu-xing, LIU Ning, HUANG Ting. Construction of evidence-based practice teaching index system for nursing undergraduates in low-to-medium resource areas based on core competency [J]. Journal of Nursing, 2023, 30(13): 24-28.
[12] YANG Li-fen, ZHANG Mei-xue, LI Xi-ran, WU Jian-ping, WANG Ning. Construction of evidence-based practice protocol for prevention of surgical site infection in children with bone implantation [J]. Journal of Nursing, 2023, 30(12): 50-55.
[13] LIU Guan-lin, CHEN Jian-peng, SONG Kai-lan, Luan Yi , ZHANG Di, WANG Xin-yuan, ZHOU Ting, KONG Ying. Effect of three-level linkage combined with family empowerment model on control of sudden symptoms in patients with hospice care at home [J]. Journal of Nursing, 2023, 30(11): 13-16.
[14] GUO Tong, ZHANG Li, LV Chun-mei, KUANG Jing-yun, FANG Yan-hong. Construction of core competency evaluation index system for chief resident nurses [J]. Journal of Nursing, 2023, 30(10): 16-19.
[15] WANG Qi, LIU La-mei, CHEN Li-na, QUE Xiao-ling, SU Shao-yu. Construction of Sensitivity Indicators of Specialized Nursing Quality of Nursing Perioperative Period of Children's Bronchoscopy [J]. Journal of Nursing, 2022, 29(8): 69-74.
Viewed
Full text


Abstract

Cited

  Shared   
[1] HUANG Yi, LI Chao-feng, CHEN Dan, KONG Xiang-lin, FAN Ying-ying. Current status of bullying in nursing education among nursing undergraduates and its influence factors: a 234-case study[J]. Journal of Nursing, 2023, 30(14): 1 -6 .
[2] ZHANG Cui-cui, ZHONG Ya-li, ZHU Li-li, CHEN Lin, WANG Yao, ZHONG Ying, GONG Xi-yan, LIAO Chang-ju. Status quo of patient safety competence of nurses in tertiary grade-A hospitals and its influencing factors: a 1,320-case study in Sichuan Province[J]. Journal of Nursing, 2023, 30(14): 7 -12 .
[3] WANG Ruo-xian, HE Bin, Wang Yu-huan, LIU Ke-ru, TANG Xue-ting, ZHAO Shu-hua, WEI Shan-shan. Current status and influencing factors of osteoporotic fracture risk perception bias in community elderly people[J]. Journal of Nursing, 2023, 30(15): 1 -5 .
[4] CAI Qian, LUO Wen, SUN Xin-xin, CHEN Rong, SONG Hui-zi, CAI Ye-peng, ZHANG Yi-ran, LIAO Yue-xia. Translation of Self-regulation of Eating Questionnaire and its reliability and validity in preschool children[J]. Journal of Nursing, 2023, 30(15): 11 -15 .
[5] PENG Ren-mei, QIAN Rong, LI Ya-jun, DUAN Huan, CHEN Lian-fang, LIU Yu-wen. Construction and validation of nomogram to predict sleep disorder risk in patients transferred from ICU[J]. Journal of Nursing, 2023, 30(15): 16 -22 .
[6] HUA Yun, WANG Wen-qin, LIU Zhi-mei, FENG Guo-he, DU Mo-han. Development of Supportive Care Need Scale for cancer patients with PICC and its reliability and validity[J]. Journal of Nursing, 2023, 30(15): 23 -28 .
[7] HU Jie-man, Miao Xue-yi, JIANG Xiao-man, TANG Chu-lei, XU Qin. Construction of core competency evaluation index system for community oncology nurse specialists[J]. Journal of Nursing, 2023, 30(15): 29 -32 .
[8] ZHANG Suo-fei, LUO Yu. SWOT analysis of cross university curriculum construction for masters of nursing based on virtual teaching and research section[J]. Journal of Nursing, 2023, 30(15): 33 -37 .
[9] YANG Qing, WANG Yan, LUO Ying-xia, ZHU Yan. Construction of quality evaluation index system of advanced nursing practice case report[J]. Journal of Nursing, 2023, 30(15): 38 -42 .
[10] . [J]. Journal of Nursing, 2023, 30(15): 43 -47 .