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Journal of Nursing ›› 2021, Vol. 28 ›› Issue (18): 28-34.doi: 10.16460/j.issn1008-9969.2021.18.028

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Experience of Adult Children in Caring for Dying Patients:A Meta-synthesis of Qualitative Studies

ZHANG Xiao-tian1, QIU Yu1, YUE Peng1, LIN Jian-yu2   

  1. 1. School of Nursing, Capital Medical University, Beijing 100069, China;
    2. Department of General Affair, Chaoyang Hospital Affiliated to Capital Medical University, Beijing 100020, China
  • Received:2021-04-12 Online:2021-09-25 Published:2021-10-12

Abstract: Objective To systematically summarize the qualitative research on real experience of adult children as caregivers of dying patients, to better understand their needs, difficulties, experience and gains, and to provide reliable basis for the construction of support scheme based on adult children's experience. Methods Four Chinese relevant databases(Wanfang database, VIP, CNKI and CBM) and four English databases (PubMed, The Cochrane Library, Web of Science and EMbase) were searched for qualitative research on the experience of adult children caregivers of dying patient from the inception to February 2021. The quality of studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies in Australia, and Nvivo 11 software was used to integrate the results through a collective integration method. Results A total of 55 findings were extracted from 14 qualified studies. The 55 findings were consequently integrated into 7 categories and finally 3 synthesized results were summarized as follows: children caregiver's attitude towards death; children's motivation, behavior, experience and changes when caring for dying patients; children's dilemma and needs when caring for dying patients. Conclusion Adult children have complicated experience in caring for the dying patients. Medical staff should pay attention to the experience and their special difficulties in time, provide death education and humanistic care for adult children caregivers, so as to promote experience sharing and care ability.

Key words: end of life, adult children, experience, qualitative research, Meta-synthesis

CLC Number: 

  • R473
[1] 徐天梦,欧小红,赵晓维,等. 促发临终患者与家属关于临终话题互动的心理体验[J]. 中国医学伦理学,2021,34(1):97-104. DOI:10.12026/j.issn.1001-8565.2021.01.19.
[2] 王晓华,孟伟康,梁晓慧,等. 安宁疗护对老年肿瘤临终患者主要照顾者负性情绪及心理应激的影响[J].河北医药,2017, 39(22):3506-3508.DOI:10.3969/j.issn.1002-7386.2017.22.041.
[3] 薛晶予. 子女生活照顾对老年人健康的影响研究[D]. 北京:首都经济贸易大学,2018. DOI:10.7666/d.D01441099.
[4] 付成琴,权明桃,吴华炼,等. ICU临终病人家属需求的质性研究[J]. 全科护理,2017,15(14):1680-1683. DOI:10.3969/j.issn.1674-4748.2017.14.005.
[5] 王宝莲,庞书勤,吴异兰,等. 老年临终患者家属照护需求的质性研究[J]. 解放军护理杂志,2016, 33(23):11-14. DOI:10.3969/j.issn.1008-9993.2016.23.003.
[6] 杜鹏,孙鹃娟,张文娟,等. 中国老年人的养老需求及家庭和社会养老资源现状——基于2014年中国老年社会追踪调查的分析[J]. 人口研究,2016,40(6):49-61.
[7] 刘晓惠,王凌云,赵洁,等. 社区晚期癌症患者家属身心副反应的质性研究[J].中国全科医学, 2015(28):3505-3508. DOI:10.3969/j.issn.1007-9572.2015.28.029.
[8] 毕瑨. 城市老年人家庭照顾困境研究——基于12个家庭的老年人及其照顾者的经验[D].济南:济南大学,2010. DOI:10.7666/d.y1747814.
[9] 战捷. 高龄老人临终前完全需要他人照料状况研究[J].中国人口科学,2004(S1):123-125.
[10] Carlander I, Sahlberg-Blom E, Hellström I, et al.The Modified Self: Family Caregivers'Experiences of Caring for a Dying Family Member at Home[J].J Clin Nurs, 2011,20(7/8):1097-1105.DOI:10.1111/j.1365-2702.2010.03331.x.
[11] Dobrina R, Vianello C, Tenze M, et al.Mutual Needs and Wishes of Cancer Patients and Their Family Caregivers During the Last Week of Life: A Descriptive Phenomenological Study[J]. J Holist Nurs, 2016,34(1):24-34. DOI: 10.1177/0898010115581936.
[12] Goldblatt H, Granot M, Zarbiv E.“Death Lay Here on the Sofa”: Reflections of Young Adults on Their Experience as Caregivers of Parents Who Died of Cancer at Home[J]. Qual Health Res, 2019, 29(4):533-544. DOI:10.1177/1049732318800676.
[13] Kristanti MS, Effendy C, Utarini A, et al.The Experience of Family Caregivers of Patients with Cancer in an Asian Country: A Grounded Theory Approach[J]. Palliat Med, 2019,33(6):676-684. DOI:10.1177/0269216319833260.
[14] Lee HT, Melia KM, Yao CA, et al.Providing Hospice Home Care to the Terminally Ill Elderly People with Cancer in Taiwan: Family Experiences and Needs[J]. Am J Hosp Palliat Care, 2014, 31(6):628-635. DOI:10.1177/1049909113499603.
[15] Leow MQ, Chan SW. The Challenges, Emotions, Coping,Gains of Family Caregivers Caring for Patients with Advanced Cancer in Singapore: A Qualitative Study[J]. Cancer Nurs,2017,40(1):22-30.DOI:10.1097/NCC.0000000000000354.
[16] Soroka JT, Froggatt K, Morris S.Family Caregivers'Confidence Caring for Relatives in Hospice Care at Home: An Exploratory Qualitative Study[J]. Am J Hosp Palliat Care, 2018,35(12):1540-1546. DOI:10.1177/1049909118787779.
[17] Tang Y.Caregiver Burden and Bereavement Among Family Caregivers Who Lost Terminally Ill Cancer Patients[J]. Palliat Support Care, 2019,17(5):515-522. DOI:10.1017/S1478951518001025.
[18] Totman J, Pistrang N, Smith S, et al.‘You Only Have One Chance to Get It Right': A Qualitative Study of Relatives'Experiences of Caring at Home for a Family Member with Terminal Cancer[J]. Palliat Med, 2015,29(6):496-507. DOI:10.1177/0269216314566840.
[19] Warrier MG, Thomas PT, Sadasivan A, et al.Family Caregivers'Experiences with Dying and Bereavement of Individuals with Motor Neuron Disease in India[J]. J Soc Work End Life Palliat Care, 2019,15(2/3):111-125.DOI:10.1080/15524256.2019.1645081.
[20] 吴洪寒,周宁,陈湘玉,等.终末期癌症安宁疗护患者照顾者照护负担与需求的质性研究[J].中国医学伦理学,2019,32(12):1566-1570.
[21] 王蒙蒙,宋静雨,叶乃宽,等.终末期病人配偶照顾者体验质性研究的Meta整合[J].护理学报,2020,27(21):40-45.DOI:10.16460/j.issn1008-9969.2020.21.040.
[22] Duggleby W, Tycholiz J, Holtslander L, et al.A Metasynthesis Study of Family Caregivers'Transition Experiences Caring for Community-dwelling Persons with Advanced Cancer at the End of Life[J]. Palliat Med, 2017,31(7):602-616. DOI:10.1177/0269216316673548.
[23] Anon. JBI Critical Appraisal Checklist for Qualitative Research2017[EB/OL]. [2020-02-08]. https://joannabriggs.org/sites/default/files/2019-05/JBI_Critical_Appraisal-Check-list_for_Qualitative_Research2017_0.pdf.
[24] Lockwood C, Munn Z, Porritt K.Qualitative Research Synthesis: Methodological Guidance for Systematic Reviewers Utilizing Meta-Aggregation[J]. Int J Evid Based Healthc, 2015,13(3):179-187.DOI:10.1097/XEB.0000000000000062.
[25] 张弛. 居家生命晚期病人家属照顾者应对方式与主观幸福感的干预性研究[D].上海:复旦大学,2011.
[26] 王培培. 死亡教育联合人文护理对晚期癌症患者家属心理状态的影响[J].心理月刊,2020,15(5):38-40. DOI:10.19738/j.cnki.psy.2020.05.019.
[27] Hudson P.Positive Aspects and Challenges Associated with Caring for a Dying Relative at Home[J]. Int J Palliat Nurs, 2004,10(2):58-65. DOI:10.12968/ijpn.2004.10.2.12454.
[28] 袁帅,丁春福. 我国独生子女家庭养老问题的思考[J]. 管理观察,2020(3):117-119.
[29] 赵明月,陈静. 会话护士模式在临终关怀中的应用[J]. 全科护理,2021,19(17):2332-2335.DOI:10.12104/j.issn.1674-4748.2021.17.007.
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