护理学报 ›› 2023, Vol. 30 ›› Issue (7): 38-43.doi: 10.16460/j.issn1008-9969.2023.07.038
李姗姗1,2, 黄红艳1, 李媛媛1, 黎江静1
摘要: 目的 了解终末期慢性肾脏病患者治疗决策需求的研究进展,为进一步制定高质量决策支持干预方案提供参考。方法 回顾国内外相关文献,对共享决策需求评估工具、终末期慢性肾脏病患者治疗决策需求内容及决策支持形式等方面进行概述。结果 终末期慢性肾脏病患者治疗决策需求内容包括决策信息需求、决策环境需求、决策沟通需求、决策社会支持需求,决策支持形式主要有决策辅助手册和视频、问题提示列表、基于网络的决策支持。结论 终末期慢性肾脏病患者治疗决策需求个体差异较大,以医护人员为视角的治疗决策需求有待进一步评估,标准化的决策需求量性评估工具有待进一步研制,同时适合不同治疗决策情景的决策支持方案和决策系统有待进一步完善和构建,以促进共享决策的实践和发展。
中图分类号:
[1] 冯珍珍, 赵慧杰, 张琳, 等. 终末期肾脏病病人治疗方案共享决策的研究进展[J]. 全科护理, 2022,20(13):1758-1761. DOI:10.12104/j.issn.1674-4748.2022.13.007. [2] 蒙艺, 陈玲, 邹丽琴. 医疗决策模式中权力权利与文化的变迁及启示[J]. 护理学报, 2021,28(16):74-78. DOI:10.16460/j.issn1008-9969.2021.16.074. [3] 惠静, 樊一桦, 李春岭, 等. 共享决策在慢性病治疗中的应用进展——以糖尿病为例[J]. 医学与哲学, 2020,41(10):21-24. DOI:10.12014/j.issn.1002-0772.2020.10.06. [4] 王淇, 苗金红. 肾脏替代治疗的终末期肾脏病患者参与医患共享决策的现状及影响因素分析[J].中国民康医学, 2022,34(15):1-4. [5] Hoefel L, O'Connor AM, Lewis KB, et al. 20th Anniversary update of the ottawa decision support framework part 1: a systematic review of the decisional needs of people making health or social decisions[J]. Med Decis Making, 2020,40(5):555-581. DOI:10.1177/0272989X20936209. [6] Toi AK, Ben CA, Lai C, et al.Difficult decisions for older Canadians receiving home care, and why they are so difficult: a web-based decisional needs assessment[J]. MDM Policy Pract,2022,7(2):97870842.DOI:10.1177/23814683221124090. [7] Witteman HO, Maki KG, Vaisson G, et al.Systematic development of patient decision aids: an update from the IPDAS collaboration[J]. Med Decis Making, 2021,41(7):736-754. DOI:10.1177/0272989X211014163. [8] 王贝贝, 杨艳, 徐文芳, 等. 患者决策辅助工具开发的研究进展[J]. 护理学杂志, 2022,37(9):23-27. DOI:10.3870/j.issn.1001-4152.2022.09.023. [9] 郑红颖, 杨林宁, 胡嘉乐, 等. 决策辅导促进患者参与医疗决策的应用研究[J]. 解放军护理杂志, 2021,38(3):45-48. DOI:10.3969/j.issn.1008-9993.2021.03.011. [10] Feenstra B, Lawson M L,Harrison D, et al.Decision coaching using the ottawa family decision guide with parents and their children: a field testing study[J]. BMC Med Inform Decis Mak, 2015,15:5. DOI:10.1186/s12911-014-0126-2. [11] O'Connor AM. Validation of a Decisional Conflict Scale[J]. Med Decis Making, 1995,15(1):25-30.DOI:10.1177/0272989X9501500105. [12] Lam WW, Kwok M, Liao Q, et al.Psychometric assessment of the Chinese version of the Decisional Conflict Scale in Chinese women making decision for breast cancer surgery[J]. Health Expect, 2015,18(2):210-220. DOI:10.1111/hex.12021. [13] 李玉. 早期原发性肝癌患者治疗决策辅助方案的构建与应用研究[D]. 上海:第二军医大学, 2017. [14] Hoerger M, Chapman BP, Mohile SG, et al.Development and psychometric evaluation of the Decisional Engagement Scale (DES-10): a patient-reported psychosocial survey for quality cancer care[J]. Psychol Assess, 2016,28(9):1087-1100. DOI:10.1037/pas0000294. [15] 王丽萍, 蔺波, 侯铭, 等. 决策参与量表的汉化及在颅内肿瘤患者家属中的信效度检验[J]. 中华护理杂志, 2022,57(13):1660-1665. DOI:10.3761/j.issn.0254-1769.2022.13.020. [16] 徐小琳, 毛捷, 王继龙, 等. 患者参与医疗决策期望量表的编制策略及条目筛选[J]. 中国当代医药, 2012,19(18):162-164. DOI:10.3969/j.issn.1674-4721.2012.18.087. [17] 高雅靖. 晚期慢性肾脏病患者参与透析方式决策干预方案构建及效果评价[D].郑州:郑州大学, 2021. [18] 崔金锐, 肖琦, 柯键, 等. 老年终末期肾病患者共享决策体验质性研究的Meta整合[J]. 中华护理杂志, 2022,57(7):863-871. DOI:10.3761/j.issn.0254-1769.2022.07.016. [19] Rao IR, Vallath N, Anupama YJ, et al.Decision-making around commencing dialysis[J].Indian J Palliat Care, 2021,27(Suppl 1):S6-S10. DOI:10.4103/ijpc.ijpc_61_21. [20] Thorsteinsdottir B, Espinoza SN, Curtis S, et al.Older patients with advanced chronic kidney disease and their perspectives on prognostic information: a qualitative study[J]. J Gen Intern Med, 2022,37(5):1031-1037. DOI:10.1007/s11606-021-07176-8. [21] Boateng EA, East L, Evans C.Decision-making experiences of patients with end-stage kidney disease (ESKD) regarding treatment in Ghana: a qualitative study[J]. BMC Nephrol,2018,19(1):371.DOI:10.1186/s12882-018-1175-z. [22] Selman LE, Bristowe K, Higginson IJ, et al.The views and experiences of older people with conservatively managed renal failure: a qualitative study of communication, information and decision-making[J]. BMC Nephrol, 2019,20(1):38. DOI:10.1186/s12882-019-1230-4. [23] Montalescot L, Dorard G, Speyer E, et al.Patient perspectives on chronic kidney disease and decision-making about treatment. Discourse of participants in the French CKD-REIN cohort study[J]. J Nephrol, 2022,35(5):1387-1397. DOI:10.1007/s40620-022-01345-6. [24] Schoot TS, Perry M, Hilbrands LB, et al.Kidney transplantation or dialysis in older adults-an interview study on the decision-making process[J]. Age Ageing, 2022,51(6). DOI:10.1093/ageing/afac111. [25] Engels N, van der Nat PB, Ankersmid JW, et al. Development of an online patient decision aid for kidney failure treatment modality decisions[J]. BMC Nephrol, 2022,23(1):236. DOI:10.1186/s12882-022-02853-0. [26] Ladin K, Lin N, Hahn E, et al.Engagement in decision-making and patient satisfaction: a qualitative study of older patients' perceptions of dialysis initiation and modality decisions[J]. Nephrol Dial Transplant, 2017, 32(8):1394-1401. DOI:10.1093/ndt/gfw307. [27] Combes G, Sein K, Allen K.How does pre-dialysis education need to change? Findings from a qualitative study with staff and patients[J]. BMC Nephrol, 2017,18(1):334. DOI:10.1186/s12882-017-0751-y. [28] van Dulmen S, Roodbeen R, Schulze L, et al. Practices and perspectives of patients and healthcare professionals on shared decision-making in nephrology[J]. BMC Nephrol, 2022,23(1):258. DOI:10.1186/s12882-022-02887-4. [29] 高雅靖, 单岩, 周越, 等. 老年晚期慢性肾脏病患者共享决策的研究进展[J]. 中国护理管理, 2020,20(9):1409-1412. DOI:10.3969/j.issn.1672-1756.2020.09.026. [30] Andersen-Hollekim T, Solbjor M, Kvangarsnes M, et al.Narratives of patient participation in haemodialysis[J]. J Clin Nurs, 2020,29(13-14):2293-2305. DOI:10.1111/jocn.15238. [31] Campbell-Crofts S, Stewart G.How perceived feelings of "wellness" influence the decision-making of people with predialysis chronic kidney disease[J]. J Clin Nurs, 2018,27(7/8):1561-1571. DOI:10.1111/jocn.14220. [32] Verberne WR, Stiggelbout AM, Bos W, et al.Asking the right questions: towards a person-centered conception of shared decision-making regarding treatment of advanced chronic kidney disease in older patients[J].BMC Med Ethics, 2022,23(1):47. DOI:10.1186/s12910-022-00784-x. [33] 刘朦朦, 孙小越, 郝雨, 等. 医患共同决策中的信任和沟通[J]. 医学与哲学, 2021,42(14):26-29. DOI:10.12014/j.issn.1002-0772.2021.14.06. [34] 高雅靖, 单岩. 中青年终末期肾脏病患者决策困境的现象学研究[J]. 护理学杂志, 2021,36(1):34-37. DOI:10.3870/j.issn.1001-4152.2021.01.034. [35] 朱行策, 刘智勇, 董钟昕, 等. 我国慢性病患者决策参与影响因素质性研究的系统评价[J]. 护理学杂志, 2022,37(9):10-16. DOI:10.3870/j.issn.1001-4152.2022.09.010. [36] Pyart R, Aggett J, Goodland A, et al.Exploring the choices and outcomes of older patients with advanced kidney disease[J]. PLoS One, 2020,15(6):e234309. DOI:10.1371/journal.pone.0234309. [37] 杨林宁, 郑红颖, 王贝贝, 等. 医患共享决策影响因素的质性研究[J]. 中国医学伦理学, 2022,35(7):755-763. [38] Fortnum D, Smolonogov T, Walker R, et al.‘My kidneys, my choice, decision aid': supporting shared decision making[J]. J Ren Care, 2015,41(2):81-87. DOI:10.1111/jorc.12100. [39] 查丹凤, 杨艳, 杨雄豪, 等. 终末期肾脏病患者透析决策辅助方案的制订及应用研究[J]. 上海护理, 2021,21(10):23-28. DOI:10.3969/j.issn.1009-8399.2021.10.006. [40] Eneanya ND, Percy SG, Stallings TL, et al.Use of a supportive kidney care video decision aid in older patients: a randomized controlled trial[J]. Am J Nephrol, 2020,51(9):736-744. DOI:10.1159/000509711. [41] 杨丹, 刘千秋, 宁婧, 等. 问题提示列表在患者及家属决策参与中的研究进展[J]. 中国临床护理, 2021,13(11):716-720. DOI:10.3969/j.issn.1674-3768.2021.11.014. [42] Lederer S, Fischer MJ, Gordon HS, et al.A question prompt sheet for adult patients with chronic kidney disease[J]. BMC Nephrol, 2016,17(1):155. DOI:10.1186/s12882-016-0362-z. [43] Subramanian L, Zhao J, Zee J, et al.Use of a decision aid for patients considering peritoneal dialysis and in-center hemodialysis: a randomized controlled trial[J]. Am J Kidney Dis, 2019,74(3):351-360. DOI:10.1053/j.ajkd.2019.01.030. [44] Muscat DM, Lambert K, Shepherd H, et al.Supporting patients to be involved in decisions about their health and care: development of a best practice health literacy App for Australian adults living with chronic kidney disease[J]. Health Promot J Austr,2021,32:115-127. DOI:10.1002/hpja.416. |
[1] | 陶娟, 潘红英, 陈慧颖, 蓝莹, 鲜雪梅. 医务人员手卫生评估工具的研究进展[J]. 护理学报, 2023, 30(6): 26-30. |
[2] | 卢雯, 陈湘玉. 护理临床决策支持系统使用意愿的影响因素研究[J]. 护理学报, 2023, 30(5): 18-22. |
[3] | 胡蓉, 宁宁, 陈佳丽, 唐秀美, 李佩芳, 王雅磊, 胡秀英. 皮肤撕裂伤知识评估工具的汉化及信效度检验[J]. 护理学报, 2022, 29(18): 18-22. |
[4] | 黄翱黎, 王妤. 护士主导的尿管拔除评估工具研究进展[J]. 护理学报, 2021, 28(23): 32-35. |
[5] | 杨利灵, 陆群峰, 江艳, 唐平, 季涧琳. 1型糖尿病患儿自我管理评估工具的研究进展[J]. 护理学报, 2021, 28(22): 36-39. |
[6] | 邓博, 刘宁, 杨琳. 临床实践项目持续性评估工具的范围综述[J]. 护理学报, 2021, 28(13): 40-45. |
[7] | 支梦佳, 王懿范, 胡琳琳. 基于连续性记录与评估工具对养老机构老年人生命质量及影响因素的分析[J]. 护理学报, 2020, 27(19): 1-5. |
[8] | 邬丽婷, 郝桂华, 侯黎莉. 炎症性肠道疾病患者血液高凝状态的护理评估及干预研究进展[J]. 护理学报, 2019, 26(9): 37-41. |
[9] | 王惠琳, 张瑜, 牛晓丹, 任晶晶, 薛文俊, 张言, 王艳红. 国内外老年综合评估工具研究进展[J]. 护理学报, 2019, 26(8): 26-30. |
[10] | 胡婷, 王惠珍. 癌症患者肠造口接受度测量工具和影响因素研究进展[J]. 护理学报, 2019, 26(8): 22-25. |
[11] | 卞薇, 苏君, 郭文梅, 万君丽, 谭明琼, 王丽华. 医患共同决策测评工具的研究进展[J]. 护理学报, 2019, 26(7): 28-33. |
[12] | 迟俊婷, 牛晓丹, 阮海慧, 陶红霞, 张静, 王艳红. 老年人潜在不适当用药的评估工具及应用进展[J]. 护理学报, 2019, 26(23): 36-40. |
[13] | 程蕾, 连冬梅. 慢性病儿童疲乏评估工具的研究进展[J]. 护理学报, 2019, 26(2): 30-33. |
[14] | 吴觅之, 潘红英, 王珍. 标准化术语在护理决策支持系统知识库中的应用进展[J]. 护理学报, 2019, 26(17): 27-30. |
[15] | 商淑华,孙国珍. 终末期心力衰竭患者姑息照护研究进展[J]. 护理学报, 2018, 25(5): 27-31. |
|