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护理学报 ›› 2021, Vol. 28 ›› Issue (22): 1-5.doi: 10.16460/j.issn1008-9969.2021.22.001

• 研究生园地 •    下一篇

乳腺癌患者女性一级亲属照顾者真实体验质性研究

陆宁宁1, 程芳1,2, 邾萍2, 马珠月1   

  1. 1.南京医科大学 护理学院,江苏 南京 211166;
    2.江苏省肿瘤医院 江苏省肿瘤防治研究所 南京医科大学附属肿瘤医院乳腺外科,江苏 南京 210009
  • 收稿日期:2021-03-24 出版日期:2021-11-25 发布日期:2021-12-13
  • 通讯作者: 程芳（1977-）,女,安徽芜湖人,硕士,副主任护师,护士长。E-mail：chfnancy@163.com
  • 作者简介:陆宁宁（1997-）,女,江苏徐州人,本科学历,硕士研究生在读。
  • 基金资助:
    国家自然科学基金（71904090）; 江苏高校优势学科建设工程项目“护理学”（苏政办发2018-87号）; “十三五”江苏省重点学科项目“护理学”（苏教研2016-9号）

Experience of Female First-degree Relative Caregivers of Breast Cancer Patients: A Qualitative Study

LU Ning-ning1, CHENG Fang1,2, ZHU Ping2, MA Zhu-yue1   

  1. 1. School of Nursing, Nanjing Medical University Nanjing 211166, China;
    2. Dept. of Breast Surgery, Jiangsu Cancer Hospital, Jiangsu Institute of Cancer Research, Affiliated Cancer Hospital of Nanjing Medical University, Nanjing 210009, China
  • Received:2021-03-24 Online:2021-11-25 Published:2021-12-13

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摘要： 目的 探讨乳腺癌患者女性一级亲属在照顾乳腺癌患者过程中的真实体验,为该群体提供针对性支持和构建干预方案提供参考依据。方法 采用描述性质性研究方法,对16例乳腺癌患者女性一级亲属照顾者进行半结构式深入访谈,采用内容分析法分析资料。结果 本组对象的照顾体验可归纳为4个主题：情绪体验（负性情绪体验,正性情绪体验）,对自身及子女的风险认知（感知到自身风险、关注下一代健康）,健康相关行为（积极行为、消极行为）,意志力（直面挑战、忽视与逃避）。结论 乳腺癌患者女性一级亲属在照顾体验中,经历对亲属的负性、正性情绪;表现出对自身及子女患病风险的担忧,并转化为积极获益的健康管理认知和行为;在意志力方面表现为面对或退缩等。

关键词: 乳腺癌, 一级亲属, 心理体验, 照顾, 质性研究

Abstract: Objective To explore the caring experience of female first-degree relative caregivers of breast cancer patients and provide reference for targeted support and intervention. Methods With descriptive qualitative research method, 16 female first-degree relative caregivers of breast cancer patients were interviewed by semi-structured interviews. Data were analyzed by content analysis method. Results The experience of female first-degree relative caregivers of breast cancer patients was integrated into 4 categories：emotional experience (negative emotional experience and positive emotional experience), risk perception for the self and children (perceived risk, and care for the health of the next generation), health-related behavior (positive behavior and negative behavior), willpower (face challenges and ignorance and escape). Conclusion After experiencing the negative and positive emotion, female first-degree relative caregivers of breast cancer patients concern about the disease risk for the self and children, which transfers into positive health management cognition and behavior, and they also experience challenges and escape.

Key words: breast cancer, first degree relative, psychological experience, caregiving, qualitative research

中图分类号: 

  • R473.73
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