以质量求发展，以服务铸品牌

Journal of Nursing ›› 2019, Vol. 26 ›› Issue (20): 33-37.doi: 10.16460/j.issn1008-9969.2019.20.033

Previous Articles     Next Articles

Perceived Vulnerability of 169 Parents of Children with Congenital Heart Disease and Its Influence Factors

JIANG Qin, ZHANG Cai-xia, MENG Ying, CHEN Mei   

  1. Children's Hospital of Nanjing Medical University, Nanjng 210008, China
  • Received:2019-01-21 Online:2019-10-25 Published:2020-07-17

PDF (PC)

128

Like

Abstract: Objective To describe the perceived vulnerability of parents of children with congenital heart disease (CHD) and to explore its influence factors. Methods A convenient sampling method was used and 169 children with CHD and their parents from a tertiary grade-A hospital in Jiangsu were investigated by using general information questionnaire, Child Vulnerability Scale (CVS), Depression-anxiety-stress Scale and Perceived Social Support Scale to measure the perceived vulnerability of caregivers. Multiple linear regression analysis was conducted for analyzing the influence factors. Results The total score of the parents' perceived vulnerability was 5.47±3.89. Multiple linear regression analysis showed that the age of the child and their parents, anxiety, and social support entered into the regression equation (P<0.05). Conclusion The perceived vulnerability of parents of CHD children is at a mediate level and its influence factors include the age of the child and their parents, anxiety, and social support. More attention should go to the younger children and their parents. Timely assessment of the anxiety and social support, individualized and multiple health education methods and wider social network will benefit the improvement of psychological and physical development of CHD children and reducing the burden of their parents, thus to enhance the perceived vulnerability of the parents of CHD children.

Key words: congenital heart disease, parents, perceived vulnerability, social support

CLC Number: 

  • R473.72
[1] Green M.Vulnerable Child Syndrome and Its Variants[J]. Pediatr Rev,1986,8(3):75-80.
[2] Guan G, Liu H, Wang Y, et al.Behavioural and Emotional Outcomes in School-aged Children after Surgery or Transcatheter Closure Treatment for Ventricular Septal Defect[J]. Cardiol Young,2014,24(5):910-917.DOI:10.1017/S104795111300142X.
[3] Samra H, Mcgrath J M.Infant Vulnerability and Parent Overprotection: Recommendations for Health Professionals[J]. Newborn and Infant Nursing Reviews, 2009,9(3):136-138.
[4] 中华人民共和国国家卫生部.中国出生缺陷防治报告[R].北京:中华人民共和国国家卫生部,2012.
[5] 陶覃龙,徐良,袁杰.先天性心血管病的病因学及流行病学研究概况[J].中国优生与遗传杂志,2015,23(8):1-4. DOI:10.13404/j.cnki.cjbhh.2015.08.001.
[6] 管国涛. 经导管介入封堵术或外科手术后室间隔缺损患儿学龄期的认知功能及行为问题[D].济南:山东大学,2011. DOI:10.7666/d.y2045446.
[7] 中国医师协会心血管内科分会先心病工作委员会.常见先天性心脏病介入治疗中国专家共识一、房间隔缺损介入治疗[J].介入放射学杂志,2011,20(1):3-9. DOI:10.3969/j.issn.1008-794X.2011.01.002.
[8] 中国医师协会心血管内科分会先心病工作委员会.常见先天性心脏病介入治疗中国专家共识二、室间隔缺损介入治疗[J].介入放射学杂志,2011,20(2):87-92. DOI:10.3969/j.issn.1008-794X.2011.02.002.
[9] 李乐之,路潜.外科学护理[M].5版.北京:人民卫生出版社,2012:37.
[10] 倪平,陈京立,刘娜.护理研究中量性研究的样本量估计[J].中华护理杂志,2010, 45(4):378-380.DOI:10.3761/j.issn.0254-1769.2010.04.037.
[11] Forsyth B W, Horwitz S M, Leventhal J M, et al.The Child Vulnerability Scale:An Instrument to Measure Parental Perceptions of Child Vulnerability1[J].J Pediatr Psychol,1996,21(1):89-101.
[12] 袁艳丽,陈京立.中文版父母感知脆弱程度量表在先心病患儿父母中的信度效度研究[J].中国护理管理,2017,17(6):774-778.DOI:10.3969/j.issn.1672-1756.2017.06.012.
[13] Lovibond S H, Lovibond P F.Manual for the Depression Anxiety Stress Scales[M]. Sydney: Psychology Foundation,1995:112-118.
[14] 龚栩,谢熹瑶,徐蕊,等.抑郁-焦虑-压力量表简体中文版(DASS-21)在中国大学生中的测试报告[J].中国临床心理学杂志,2010,18(4):443-446.DOI:10.16128/j.cnki.1005-3611.2010.04.020.
[15] 汪向东,王希林,马弘.心理卫生评定量表手册(增订版)[M].北京:中国心理卫生杂志社,1999:131-133.
[16] 袁艳丽. 室间隔缺损修补术后患儿母亲感知脆弱现状调查及影响因素研究[D].北京:北京协和医学院,2017.
[17] Vrijmoet-Wiersma C M, Egeler R M, Koopman H M, et al. Parental Stress and Perceived Vulnerability at 5 and 10 Years after Pediatric SCT[J]. Bone Marrow Transplant,2010,45(6):1102-1108.DOI:10.1038/bmt.2009.309.
[18] 洪文. 先天性心脏病患儿父母焦虑状况及相关因素分析[J].护理研究,2011,25(10A):871-873. DOI:10.3969/j.issn.1009-6493.2011.10.011.
[19] Cukor D, Coplan J, Brown C, et al.Depression and Anxiety in Urban Hemodialysis Patients[J].Clin J Am Soc Nephrol,2007,2(3):484-490. DOI:10.2215/CJN.00040107.
[20] Samra H A, Mcgrath J M,Wey H.Are Former Late-preterm Children at Risk for Child Vulnerability and Overprotection?[J].Early Hum Dev,2010,86(9):557-562.DOI:10.1016/j.earlhumdev.2010.07.005.
[21] 张晓红,刘慧慧,孟丽娜,等.先天性心脏病患儿父母心理问题的研究进展[J].护理学报,2017,24(10):35-38. DOI:10.16460/j.issn1008-9969.2017.10.035.
[22] Houtzager B A, Moller E L, Maurice-Stam H, et al.Parental Perceptions of Child Vulnerability in a Community-based Sample: Association with Chronic Illness and Health-related Quality of Life[J]. J Child Health Care, 2015,19(4):454-465. DOI:10.1177/1367493514530954.
[23] Vrijmoet-Wiersma C M, Ottenkamp J, van Roozendaal M, et al. A Multicentric Study of Disease-related Stress, and Perceived Vulnerability, in Parents of Children with Congenital Cardiac Disease[J]. Cardiol Young, 2009, 19(6):608. DOI:10.1017/S1047951109991831.
[24] 宋明阳,周兰姝.先天性心脏病患儿照顾者负担现状及影响因素[J].解放军护理杂志,2018, 35(3):17-20.DOI:10.3969/j.issn.1008-9993.2018.03.004.
[25] 徐志霞,韩二环,张艳.对先天性心脏病患儿家属采用回授法健康教育的效果观察[J].护理学报,2017,24(12):68-70.DOI:10.16460/j.issn1008-9969.2017.12.068.
[26] Horwitz S M, Leibovitz A, Lilo E, et al.Does an Intervention to Reduce Maternal Depression and Trauma also Improve Mother's Perceptions of their Infants Vulnerability?[J]. Infant Ment Health J,2015,36(1):42-52. DOI:10.1002/imhj.21484.
[27] 张远波,翟海昕,邓海波.复杂先天性心脏病孤残患儿的护理[J].护理学报,2011, 18(9B):39-41. DOI:10.3969/j.issn.1008-9969.2011.18.015.
[28] 吴筱筱,陈京立.室间隔缺损修补术后患儿母亲居家护理需求质性研究[J].护理研究, 2014,28(4B):1333-1335. DOI:10.3969/j.issn.10096493.2014.11.021.
[1] ZHU Yi-fan, CHEN Zhi-qian, GUO Qiao-hong, SU Ya-li. Current Status of Dignity of 196 Breast Cancer Women Receiving Chemotherapy and Its Influence Factors [J]. Journal of Nursing, 2020, 27(12): 33-37.
[2] YE Zi-wen, ZHWN Li, ZHU Mu-lan, HU Ting, WANG Hui-zhen. Stigma of Patients with Preventive Ostomy and Its Influence Factors: A 220-case Study [J]. Journal of Nursing, 2019, 26(3): 40-45.
[3] XIE Wen-jun, ZHANG Shuai, LIU Yi, ZHANG Hui-juan, LIU Gui-ying, WANG Bei, LIU Jie, LIU Yu-qiu, GUAN Wei. Perceived Social Support and Coping Style as Mediators between Resilience and Post-traumatic Growth among Patients with Hematopoietic Stem Cell Transplant [J]. Journal of Nursing, 2019, 26(3): 73-78.
[4] KANG Xiao-fei, HAN Xin-mei, LI Guo-peng, FANG Mei. Psychological Distress of 331 Patient's Spouses Firstly with in vitro Fertilization and Embryo Transfer and Its Influence Factors [J]. Journal of Nursing, 2019, 26(2): 45-50.
[5] QIN Ru-meng, LU Cai-yun, ZHOU Li-hua, HUANG Xiu-hua, ZHONG Qi. Current Status of Post-traumatic Growth of Gynecological Cancer Patients and Its Influence Factors [J]. Journal of Nursing, 2019, 26(15): 9-13.
[6] SUN Bo-wei, FU Rong, CHU Hong, ZHU Fan, CUI Bo. Current Status of Psychological Resilience in Patients with Multiple Myeloma and Its Influence Factors: A 144-case Study [J]. Journal of Nursing, 2019, 26(10): 38-43.
[7] WANG Ling,SUN Dan,ZHENG Li. Effects of Group Activity on Quality of Postoperative Life in Liver Transplant Recipients [J]. Journal of Nursing, 2018, 25(6): 64-67.
[8] XU Ying,ZHU Zhan-hong,WEI Ying-qing,CHENG Ming. Effect of Sedation with Dexmedetomidine in 183 Pediatric Patients with Congenital Heart Disease in Color Doppler Uitrasound of Heart [J]. Journal of Nursing, 2018, 25(3): 68-70.
[9] REN Zhi-ling, MAO Nai-quan, GAN Hai-jie, WEI Yu-qun, WEI Qiao-ling, SUN Yue, PANG Yong-hui. Influence Factors of Stigma of Patients with Lung Cancer [J]. Journal of Nursing, 2018, 25(19): 5-9.
[10] YU Xiao-mei,YAN Jin. Physical Activity and Its Influencing Factors of Breast Cancer Patients in Convalescence Stage [J]. Journal of Nursing, 2018, 25(10): 5-9.
[11] LIU Zhi-chen,ZHANG Wen-hao,ZHANG Hong-chen,GAO Li,CAO Bao-hua. Quality of Life of Rheumatoid Arthritis Patients with Perimenopausal Syndrome and Its Influencing Factors [J]. Journal of Nursing, 2018, 25(1): 39-42.
[12] LIAN Dong-mei,SUN Jing,SONG Hong-mei,LI Yang. Effect of Family-centered Intervention on Parents of Children with Systemic Lupus Erythematosus [J]. Journal of Nursing, 2017, 24(6): 58-63.
[13] REN Wei ,SHI Cai-xiao,SHI Fu-zhi,LI Si-jing,TANG Na ,CAI Wen-zhi. Interview Research on Participation in Ill Children Safety of Ill Children 's Parents [J]. Journal of Nursing, 2017, 24(4): 72-75.
[14] LI Fei,HUANG Mei-ling,ZENG Ying-chun,FANG Xiao-min. Influence Factors of Postpartum Depression in High-risk Pregnant Women [J]. Journal of Nursing, 2017, 24(23): 1-4.
[15] MAO Zhi-hui,LIU Xiao-ting,LIU Wei,SUN Xiao-ting,LIU Yan-xia,LI Wei. Depression of 265 Caregivers of Disabled Elders in Huanggu District of Shenyang City and Its Influence Factors [J]. , 2017, 24(2): 32-36.
Viewed
Full text


Abstract

Cited
  Shared   
[1] XIA Ting-ting,WANG Shu-yun,YANG Fu-guo,MA Hui,YIN Chun-lan,WANG Guang-ning,FAN Hai-xia,LI Yao-yao. Association of Stoma Pressure with Hope Level and Self-management among Colostomy Patients[J]. Journal of Nursing, 2018, 25(18): 8 -11 .
[2] WANG Jing,LIU Rui-han,GONG Wen-hua,ZOU Yu,WANG Yu,WANG Fang. Mediating Effect of Self-efficacy between Social Support and Resilience in Type 2 Diabetic Patient[J]. Journal of Nursing, 2018, 25(18): 12 -15 .
[3] JIANG Wen-chun,WEN Xian-xiu,GU Feng-jiao. Construction of Nursing Management Quality Evaluation Standard System in Hemodialysis Room with Delphi Method and Analytic Hierarchy Process[J]. Journal of Nursing, 2018, 25(18): 16 -21 .
[4] LIU Li-ping, WU Yan-ni, CONG Wei-lian, HU Ming-yu, LI Xiao-xia, ZHOU Chun-lan. Qualitative Studies on Self-care Experience of Cancer Patients undergoing Chemotherapy:A Systematic Review[J]. Journal of Nursing, 2020, 27(7): 1 -6 .
[5] SUN Wen-yu, BI Hong-yan. Effects of Visual Tracking Training on Walking Function and Daily Living Ability in Patients with Stroke[J]. Journal of Nursing, 2020, 27(7): 7 -10 .
[6] . [J]. Journal of Nursing, 2020, 27(7): 11 -14 .
[7] RAN Li-wei, DONG Qu-long, LI Gui-qing, ZHANG Yan, SUN Chao-ying, LIU Hong-qing, SU Yu-mei, SHI Hai-xia. Impact of Development-oriented Performance Appraisal on Midwives' Behaviors[J]. Journal of Nursing, 2019, 26(18): 12 -14 .
[8] . [J]. Journal of Nursing, 2019, 26(18): 15 -17 .
[9] . [J]. Journal of Nursing, 2019, 26(18): 18 -21 .
[10] HE Wen-bin, LIAO Raon, YIN Xi, YANG Qian, HU Jun'e, YAN Yan, ZHOU Xue-guo, YAO Xiao-yun, CHEN Hong-yu. Evidence Summary for Cardiac Rehabilitation in Patients after Cardiac Valve Replacement[J]. Journal of Nursing, 2019, 26(18): 32 -36 .