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护理学报 ›› 2022, Vol. 29 ›› Issue (9): 42-46.doi: 10.16460/j.issn1008-9969.2022.09.042

• 循证医学 • 上一篇    下一篇

乳腺癌相关健康教育材料可读性评估的范围综述

邹自玉1, 唐红梅2, 吴丽1, 陈荣凤2, 梅花2   

  1. 1.上海中医药大学 研究生院,上海 200120;
    2.上海健康医学院 护理与管理学院,上海 201318
  • 收稿日期:2021-12-22 出版日期:2022-05-10 发布日期:2022-06-09
  • 通讯作者: 唐红梅(1968-),女,上海人,博士研究生,教授。E-mail:tanghm@sumhs.edu.cn
  • 作者简介:邹自玉(1998-),女,河南信阳人,本科学历,硕士研究生在读,护士。
  • 基金资助:
    上海市2020年度“科技创新行动计划”科普专项项目(20DZ2311100)

Scoping Review of Readability Assessment of Breast Cancer-related Health Education Materials

ZOU Zi-yu1, TANG Hong-mei2, WU Li1, CHEN Rong-feng2, MEI Hua2   

  1. 1. Graduate School, Shanghai University of Traditional Chinese Medicine, Shanghai 200120, China;
    2. School of Nursing and Health Management, Shanghai University of Medicine & Health Sciences 201318, China
  • Received:2021-12-22 Online:2022-05-10 Published:2022-06-09

摘要: 目的 以范围综述的研究方法为基础,汇总相关文献,确定目前乳腺癌相关健康教育材料的可读性水平。方法 计算机检索Cochrane Library、PubMed、Web of Science、中国知网、维普中文期刊文献库、万方医学数据库、中国生物医学文献数据库,并辅以人工检索,检索时限均从建库至2022年4月,由2名评价者对文献进行筛选、收集、提取并总结。结果 共检索文献3 028篇,最终纳入13篇,大多数材料的可读性水平高于指南推荐的六年级水平。结论 关于乳腺癌相关健康教育材料的可读性评估文献数量较少,有限的证据表明,大多数健康教育材料较难阅读,国内关于乳腺癌健康教育材料的可读性研究不足。

关键词: 可读性, 乳腺癌, 健康教育材料, 范围综述

Abstract: Objective To conduct a scoping review of the readability of breast cancer related health education materials. Methods We collected Chinese and English literature in Cochrane Library, PubMed, Web of Science, CNKI, VIP, Wangfang Data, and CBM from the inception to April 2022. Two researchers extracted and summarized the literature. Results A total of 3,028 pieces of literature were retrieved, and 13 eligible were collected. The readability of most of the materials was above the recommended level of sixth grade. Conclusion There is fewer literature on readability assessment of breast cancer related health education materials. Limited evidence indicates that most health education materials are difficult to read, and there is still inadequate research on readability of breast cancer related health education materials in China.

Key words: readability, breast cancer, health education material, scoping review

中图分类号: 

  • R473.73
[1] Gopal S, Sharpless NE.Cancer as a Global Health Priority[J]. JAMA,2021,15(8):198-207. DOI:10.1001/jama.2021.12778.
[2] 中国政府网.健康中国行动(2019-2030)[EB/OL].(2019-07-15)[2020-07-20].http://www.gov.cn/xinwen/2019-07/15/content_5409694.htm.
[3] Rababah JA, Al-Hammouri MM, Drew BL, et al.Health Literacy: Exploring Disparities among College Students[J]. BMC Public Health, 2019,19(1):1401-1410. DOI:10.1186/s12889-019-7781-2.
[4] Hoffmann T,Worrall L.Designing Effective Written Health Education Materials: Considerations for Health Professionals[J]. Disabil Rehabil,2004,26(19):1166-1173. DOI:10.1080/09638280410001724816.
[5] 汪秋伊,谢伦芳,王蕾,等. 健康教育材料可读性测评工具的研究进展[J]. 中国健康教育,2019, 35(1):66-71. DOI:10.16168/j.cnki.issn.1002-9982.2019.01.016.
[6] Wilcox L,Feiner S,Elhadad N,et al.Patient-Centered Tools for Medication Information Search[J]. Int Conf Pervasive Comput Technol Healthc, 2014,39(14):49-56. DOI:10.4108/icst.pervasivehealth.2014.254975.
[7] Manchaiah V, Kelly-Campbell RJ, Bellon-Harn ML,et al.Quality, Readability, and Suitability of Hearing Health-related Materials:A Descriptive Review[J]. Am J Audiol,2020,29(3):513-527. DOI:10.1044/2020_aja-19-00040.
[8] 吴丽, 陈荣凤, 邹自玉,等.问题提示列表在乳腺癌患者中临床应用效果的系统评价[J]. 护理学报,2022, 29(2):45-50. DOI:10.16460/j.issn1008-9969.2022.02.045.
[9] Papadakos JK, Hasan SM, Barnsley J, et al.Health Literacy and Cancer Self-management Behaviors:A Scoping Review[J]. Cancer,2018,124(21):4202-4210. DOI:10.1002/cncr.31733.
[10] Sadigh G, Singh K,Gilbert K,et al.Mammography Patient Information at Hospital Websites: Most neither Comprehensible nor Guideline Supported[J]. AJR Am J Roentgenol,2016,207(5):947-951. DOI:10.2214/ajr.16.16436.
[11] Cox N,Bowmer C,Ring A.Health Literacy and the Provision of Information to Women with Breast Cancer[J]. Clin Oncol (R Coll Radiol), 2011, 23(3):223-227. DOI:10.1016/j.clon.2010.11.010.
[12] Choudhery S,Xi Y,Chen H,et al.Readability and Quality of Online Patient Education Material on Websites of Breast Imaging Centers[J]. J Am Coll Radiol,2020,17(10):1245-1251. DOI:10.1016/j.jacr.2020.04.016.
[13] Cortez S,Milbrandt M,Kaphingst K,et al.The Readability of Online Breast Cancer Risk Assessment Tools[J]. Breast Cancer Res Treat,2015,154(1):191-199.DOI:10.1007/s10549-015-3601-2.
[14] Alkhalili R, Shukla PA, Patel RH,et al.Readability Assessment of Internet-based Patient Education Materials Related to Mammography for Breast Cancer Screening[J]. Acad Radiol,2015,22(3):290-295. DOI:10.1016/j.acra.2014.10.009.
[15] Warner ET, Kennedy M, Maschke A,et al.Evaluation of Existing Patient Educational Materials and Development of a Brochure for Women with Dense Breasts[J].Breast,2020,50(7):81-84. DOI:10.1016/j.breast.2020.02.001.
[16] Del Valle DD, Pardo JA, Maselli AM, et al.Evaluation of Online Spanish and English Health Materials for Preventive Mastectomy.Are We Providing Adequate Information?[J]. Breast Cancer Res Treat,2021,187(1):1-9. DOI:10.1007/s10549-021-06171-1.
[17] Powell LE,Andersen ES,Pozez AL.Assessing Readability of Patient Education Materials on Breast Reconstruction by Major US Academic Hospitals as Compared with Nonacademic Sites[J]. Ann Plast Surg,2021,86(6):610-614. DOI:10.1097/sap.0000000000002575.
[18] Tran BNN,Singh M,Singhal D,et al.Readability,complexity,and Suitability of Online Resources for Mastectomy and Lumpectomy[J]. J Surg Res,2017,212(2):214-221. DOI:10.1016/j.jss.2017.01.012.
[19] Seth AK,Vargas CR,Chuang DJ,et al.Readability Assessment of Patient Information about Lymphedema and Its Treatment[J]. Plast Reconstr Surg,2016,137(2):287e-295e. DOI:10.1097/01.prs.0000475747.95096.ab.
[20] Parker PD,Heiney SP,Friedman DB,et al.The Experience of Chemotherapy Teaching and Readability of Chemotherapy Educational Materials for Women with Breast Cancer[J]. J Cancer Educ,2021,36(1):47-55. DOI:10.1007/s13187-019-01596-1.
[21] Parker PD, Prabhu AV, Su LJ, et al.What’s in Between the Lines: Assessing the Readability, Understandability, and Actionability in Breast Cancer Survivorship Print Materials[J].J Cancer Educ,2021,42(6):136-145. DOI:10.1007/s13187-021-02003-4.
[22] Li Y, Zhou X,Zhou Y,et al.Evaluation of the Quality and Readability of Online Information about Breast Cancer in China[J]. Patient Educ Couns,2021,104(4):858-864. DOI:10.1016/j.pec.2020.09.012.
[23] Eltorai AE, P Thomas N, Yang H, et al. Readability of Trauma-related Patient Education Materials from the American Academy of Orthopaedic Surgeons[J]. Trauma Mon,2016,21(1):e20141. DOI:10.5812/traumamon.20141.
[24] Shoemaker SJ,Wolf MS,Brach C.Development of the Patient Education Materials Assessment Tool (PEMAT): A New Measure of Understandability and Actionability for Print and Audiovisual Patient Information[J]. Patient Educ Couns,2014,96(3):395-403.DOI:10.1016/j.pec.2014.05.027.
[25] Sun W,Luo A,Bian Z,et al.Assessing the Quality of Online Health Information about Breast Cancer from Chinese Language Websites: Quality Assessment Survey[J]. JMIR Cancer,2021,7(4):e25783. DOI:10.2196/25783.
[26] Yan L,Xingtong Z,Yidong Z,et al.Evaluation of the Quality and Readability of Online Information about Breast Cancer in China[J]. Patient Educ Couns, 2020,104(4):858-864. DOI:10.1016/j.pec.2020.09.012.
[27] Sung YT, Chen JL,Cha JH,et al.Constructing and Validating Readability Models: The Method of Integrating Multilevel Linguistic Features with Machine Learning[J].Behav Res Methods, 2015, 47(2):340-354. DOI:10.3758/s13428-014-0459-x.
[28] 张宁志. 汉语教材语料难度的定量分析[J].世界汉语教学,2000,14(3):83-88.DOI:10.13724/j.cnki.ctiw.
[29] 汪秋伊,谢伦芳,王蕾,等. 系统性红斑狼疮平面健康教育材料的可读性评价[J]. 医学与社会,2020,33(8):20-24. DOI:10.13723/j.yxysh.
[30] 王蕾,汪秋伊,李星,等. 系统性红斑狼疮网络健康信息的可读性评估[J].护理研究,2020,34(24):4344-4349.
[31] 王芝为,方媛媛,汪秋伊,等. 高血压健康教育平面材料的可读性评估[J].中国健康教育, 2020, 36(12):1122-1125+1167. DOI:10.16168/j.cnki.issn.1002-9982.2020.12.014.
[32] Alaofi RK,Nassif MO,Al-Hajeili MR.Prophylactic Mastectomy for the Prevention of Breast Cancer: Review of the Literature[J]. Avicenna J Med,2018,8(3):67-77. DOI:10.4103/ajm.AJM_21_18.
[33] Schramm J.Health Literacy: Economic and Other Intricate Problems[J]. World Neurosurg,2016,85(6):28-29. DOI:10.1016/j.wneu.2015.08.049.
[34] Baker S, Malone E, Graham L, et al.Patient-Reported Health Literacy Scores are Associated with Readmissions Following Surgery[J]. Am J Surg,2020,220(5):1138-1144. DOI:10.1016/j.amjsurg.2020.06.071.
[35] Park NH,Song MS,Shin SY, et al.The Effects of Medication Adherence and Health Literacy on Health-related Quality of Life in Older People with Hypertension[J]. Int J Older People Nurs,2018,13(3):e12196. DOI:10.1111/opn.12196.
[36] 厉锦巧, 张邢炜, 张伟,等. 冠心病网络健康信息的质量、可理解性和可实施性评估[J]. 中华护理教育, 2019, 16(3):173-177.
[37] 彭丽,唐广,杨欢,等. 泛在网络环境下高血压病健康信息的质量评价[J]. 现代预防医学, 2017, 44(20):3727-3730.
[38] 夏得月,陈珮,黄敏,等. 国内外阿尔茨海默病协会发布患者在线教育材料的现状与分析[J].中国健康教育,2020,36(2):182-185. DOI:10.16168/j.cnki.issn.1002-9982.2020.02.020.
[39] 吴超,郭瑞卿,吕树泉,等. 中国互联网网站关于糖尿病健康信息的质量评价[J]. 中国循证医学杂志, 2019, 19(10):1250-1254.
[40] Fahimuddin FZ,Sidhu S,Agrawal A.Reading Level of Online Patient Education Materials from Major Obstetrics and Gynecology Societies[J]. Obstet Gynecol,2019,133(5):987-993. DOI:10.1097/aog.0000000000003214.
[41] Morony S,Flynn M,Mccaffery KJ,et al.Readability of Written Materials for CKD Patients: A Systematic Review[J].Am J Kidney Dis,2015,65(6):842-850.DOI:10.1053/j.ajkd.2014.11.025.
[42] Samuel D, Vilardo N, Isani SS, et al.Readability Assessment of Online Gynecologic Oncology Patient Education Materials from Major Governmental, non-Profit and Pharmaceutical Organizations[J]. Gynecol Oncol, 2019,154(3):616-621. DOI:10.1016/j.ygyno.2019.06.026.
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