摘要： 目的 对失智照护者知识技能需求及数字化资源的相关研究进行综述,以期为我国开发和创新相关疾病的资源转化与传播方式提供借鉴。方法 通过对国内外文献进行梳理,从照护者知识技能需求、知识技能资源支持途径及数字化资源在失智照护知识技能指导中的应用3方面进行总结。结果 为照护者提供数字化失智照护技能资源,有助于提高照护知识技能与照护能力,减轻照护负担,改善照护者与患者的生活质量。结论 目前我国尚处于探索阶段,有待进一步创新和完善,以形成形式多样、满足多元化个性化照护需求及内容规范数字化照护知识技能和社会化支持服务网络。
中图分类号:
- R47-05
| [1] 田双月,刘帅,王志稳. 中重度失智患者居家照护者困扰问题及需求调研[J]. 中国护理管理,2019,19(10):1502-1507. [2] Krutter S, Schaffler-Schaden D, Essl-Maurer R, et al.Comparing Perspectives of Family Caregivers and Healthcare Professionals Regarding Caregiver Burden in Dementia Care: Results of a Mixed Methods Study in a Rural Setting[J]. Age Ageing, 2020, 49(2):199-207. DOI:10.1093/age-ing/afz165. [3] França AB, Gordon AL, Samra R, et al.Symptoms of Mood Disorders in Family Carers of Older People with Dementia Who Experience Caregiver Burden: a Network Approach[J]. Age Ageing,2020,49(4):628-633.DOI:10.1093/ageing/afaa008. [4] Sheehan OC, Haley WE, Howard VJ, et al.Stress, Burden, and Well-being in Dementia and Non-dementia Caregivers: Insights from the Caregiving Transitions Study[J]. Gerontologist, 2021, 61(5):670-679. DOI:10.1093/geront/gnaa108. [5] GBD.Global, Regional, and National Burden of Alzheimer's Disease and Other Dementias,1990-2016:A Systematic Analysis for the Global Burden of Disease Study 2016[J]. Lancet Neurol, 2019, 18(1):88-106. DOI:10.1016/S1474-4422(18)30403-4. [6] Holt CT, Hein LH, Andersen-Ranberg K, et al.Informal Carers' Support Needs When Caring for a Person with Dementia-A Scoping Literature Review[J]. Scand J Caring Sci, 2021, 35(3):685-700. DOI:10.1111/scs.12898. [7] Wang S, Cheung DSK, Leung AYM.Overview of Dementia Care under the Three-tier Long-term Care System of China[J]. Public Health Nurs, 2019, 36(2):199-206. DOI:10.1111/phn.12573. [8] 郝薇,武杰,张晖,等.居家失智患者亲属照顾者支持性照护需求的研究[J].中国护理管理,2015, 15(11):1294-1297. DOI:10.3969/j.issn.1672-1756.2015.11.004. [9] Dai Y, Zhao J, Li S, et al.Caregivers' Dementia Knowledge and Care Approach in Residential Aged Care Facilities in China[J]. Am J Alzheimers Dis Other Demen, 2020, 35: 1533317520937096.DOI:10.1177/1533317520937096. [10] Rong X, Wu F, Tang D, et al.Development of a Self-management Support Program for Caregivers of Relatives with Dementia in Shanghai[J]. Geriatr Nurs, 2020, 41(2):98-104. DOI:10.1016/j.gerinurse.2019.07.009. [11] 丁群,丁亚萍,余洁,等. 失智患者家庭照顾者自我管理体验质性研究的系统评价[J].中国实用护理杂志, 2020, 36(23):1835-1841.DOI:10.3760/cma.j.cn211501-20191129-03537. [12] 王业青,宋洁,张小满,等. 失智症患者居家照顾者需求质性研究的Meta整合[J]. 护理学报,2019, 26(23):50-54. DOI:10.16460/j.issn1008-9969.2019.23.050. [13] Xu L,Hsiao HY,Denq W,et al.Training Needs for Dementia Care in China from the Perspectives of Mental Health Providers: Who, What, and How[J]. Int Psychogeriatr, 2018, 30(7):929-940.DOI:10.1017/S1041610217002654. [14] Wang M, Shao S, Li J, et al.The Needs of Informal Caregivers and Barriers of Primary Care Workers toward Dementia Management in Primary Care: A Qualitative Study in Beijing[J]. BMC Fam Pract, 2018, 19(1):201.DOI:10.1186/s12875-018-0890-7. [15] Farran CJ, McCann JJ, Fogg LG, et al. Developing a Measurement Strategy for Assessing Family Caregiver Skills: Conceptual Issues[J]. Alzheimers Care Today, 2009, 10(3): 129-139. DOI:10.1097/ACQ.0b013e3181b15d82. [16] 李苗,陈爱民,景莉,等. Heimlich急救法在阿尔茨海默病照护者培训中的应用[J]. 齐鲁护理杂志, 2017,23(17): 123-125. DOI:10.3969/j.issn.1006-7256.2017.17.058. [17] Brown P, Oliver E, Dening KH.Supporting Family Carers via the Admiral Nurse Dementia Helpline: Reflection on a Case Study[J]. Nurs Older People, 2020,32(5):16-20. DOI:10.7748/nop.2020.e1248. [18] 黄兆晶,张雪梅,张泽梅. 体验式教学在失智老人照护者培训中的应用研究[J]. 护理研究,2017, 31(30):3869-3871. DOI:10.3969/j.issn.1009-6493.2017.30.034. [19] 江长缨,臧苇萍,卫锋,等. 社区失智患者居家照顾者照护技能培训效果研究[J]. 护理学报,2017, 24(16):71-73. [20] 臧苇萍,江长缨. 社区护士家访服务对失智患者居家照顾者积极感受的影响研究[J]. 护士进修杂志,2017, 32(23): 2115-2118. [21] Zhang J, Wang Z, Li Y, et al. Effects of a Caregiver Training Program on Oral Hygiene of Alzheimer's Patients in Institutional Care[J]. J Am Med Dir Assoc, 2021, 22(7):1429-1434.e1. DOI:10.1016/j.jamda.2020.12.042. [22] Guerrero LR, Shim A, Gans D, et al.Training for in-home Supportive Services Caregivers in an Underserved Area[J]. J Health Care Poor Underserved,2019,30(2):739-748. DOI:10.1353/hpu.2019.0053. [23] Bryan JL, Asghar-Ali AA.Development and Dissemination of an Interprofessional Online Dementia Training Curriculum[J]. J Am Geriatr Soc, 2020, 68(1):192-197. DOI:10.1111/jgs.16240. [24] Etxeberria I, Salaberria K, Gorostiaga A.Online Support for Family Caregivers of People with Dementia: A Systematic Review and Meta-analysis of RCTs and Quasi-experimental Studies[J]. Aging Ment Health, 2021, 25(7):1165-1180. DOI:10.1080/13607863.2020.1758900. [25] Ehlman MC, Nimkar S, Nolan BAD, et al.Health Workers' Knowledge and Perceptions on Dementia in Skilled Nursing Homes: A Pilot Implementation of Teepa Snow's Positive Approach to Care Certification Course[J]. J Contin Educ Health Prof, 2018, 38(3):190-197. DOI:10.1097/CEH.0000000000000216. [26] Choi SK, Yelton B, Ezeanya VK, et al.Review of the Content and Quality of Mobile Applications about Alzheimer's Disease and Related Dementias[J]. J Appl Gerontol, 2020, 39(6):601-608. DOI:10.1177/0733464818790187. [27] Su HF, Koo M, Lee WL, et al.A Dementia Care Training Using Mobile E-learning with Mentoring Support for Home Care Workers:a Controlled Study[J]. BMC geriatrics, 2021, 21(1):126. DOI:10.1186/s12877-021-02075-3. [28] 李芳英,辛红菊,楼高波,汤小芳. 基于微信的延续护理对失智患者照顾者心理状况的影响[J].中华全科医学, 2017, 15(6):1069-1071. [29] Egan KJ, Pinto-Bruno á C, Bighelli I, et al. Online Training and Support Programs Designed to Improve Mental Health and Reduce Burden among Caregivers of People with Dementia: A Systematic Review[J].J Am Med Dir Assoc,2018,19(3):200-206.e201.DOI:10.1016/j.jamda.2017.10.023. [30] 位文静. 老年痴呆照顾者照护技能干预方案的构建及实证研究[D]. 郑州:郑州大学, 2019. [31] Alzheimer's Disease International.World Alzheimer Report 2019: Attitudes to Dementia[EB/OL]. [2021-01-08]. https://www.alz.co.uk/research/world-report-2019. [32] Shadarevian J, Chan C, Berndt A, et al.Creating a Toolkit with Stakeholders for Leveraging Tablet Computers to Support Person-centred Dementia Care in Hospitals[J]. J Rehabil Assist Technol Eng,2020,7:2055668320960385. DOI:10.1177/2055668320960385. [33] Pot AM, Gallagher-Thompson D, Xiao LD, et al.iSupport: a WHO Global Online Intervention for Informal Caregivers of People with Dementia[J]. World Psychiatry, 2019, 18(3): 365-366. DOI:10.1002/wps.20684. [34] Xiao LD, McKechnie S, Jeffers L, et al. Stakeholders' Perspectives on Adapting the World Health Organization iSupport for Dementia in Australia[J].Dementia (London), 2021, 20(5):1536-1552. DOI:10.1177/1471301220954675. [35] Teles S, Napolskij MS, Paúl C, et al.Training and Support for Caregivers of People with Dementia: The Process of Culturally Adapting the World Health Organization iSupport Programme to Portugal[J]. Dementia (London), 2021, 20(2):672-697. DOI:10.1177/1471301220910333. [36] Prins M, Veerbeek M, Willemse BM, et al.Use and Impact of the Alzheimer Experience: A Free Online Media Production to Raise Public Awareness and Enhance Knowledge and Understanding of Dementia[J].Aging Ment Health,2020,24(6):985-992. DOI:10.1080/13607863.2019.1579781. [37] Tompkins CJ, Ihara ES, Inoue M, et al.A Web-based Training Program for Direct Care Workers in Long-term Care Communities: Providing Knowledge and Skills to Implement a Music and Memory Intervention[J].Gerontol Geriatr Educ,2020,41(3):367-379.DOI:10.1080/02701960.2019.1699074. [38] Cunnah K, Howe D, Thorpe J, et al.Training People with Dementia/Cognitive Impairment and Their Carers in the Use of Web-based Supportive Technologies (Innovative practice)[J]. Dementia (London),2021,20(2):796-806. DOI:10.1177/1471301219887592. |
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