以质量求发展，以服务铸品牌

护理学报 ›› 2021, Vol. 28 ›› Issue (24): 57-62.doi: 10.16460/j.issn1008-9969.2021.24.057

• 心理卫生 • 上一篇    

晚期癌症患者子女行孝动机及行孝体验的质性研究

崔菡斐1, 乔娟1, 魏婧雯2, 董凤齐3   

  1. 1.淄博市中心医院,山东 淄博 255000;
    2.潍坊医学院 护理学院,山东 潍坊 261053;
    3.天津医科大学肿瘤医院,天津 300060
  • 收稿日期:2021-06-16 出版日期:2021-12-25 发布日期:2022-01-11
  • 作者简介:崔菡斐（1994-）,女,山东菏泽人,硕士,护师。

Filial Piety Motivation and Experience among Children of Patients with Advanced Cancer: A Qualitative Study

CUI Han-fei1, QIAO Juan1, WEI Jing-wen2, DONG Feng-qi3   

  1. 1. Zibo Central Hospital, Zibo 255000, China;
    2. School of Nursing, Weifang Medical College, Weifang 261053, China;
    3. Tianjin Medical University Cancer Institute and Hospital, Tianjin 300060, China
  • Received:2021-06-16 Online:2021-12-25 Published:2022-01-11

PDF (PC)

482

赞

摘要： 目的 对晚期癌症患者子女行孝动机及体验进行探讨,为临床护理干预提供依据。方法 采用质性研究的现象学研究方法,选取2019年5月在天津医科大学肿瘤医院住院的20名晚期癌症患者子女进行深度访谈并录音,采用Colaizzi的现象学分析法对原始资料进行整理分析。结果 20名晚期癌症患者子女行孝动机方面提炼出3个主题,包括认为世代传承、感恩反哺、社会期望;在行孝体验方面提炼出3个主题,包括愧疚、无助感、压力应对;在践行孝道方面提炼出5个主题,陪伴、顺从父母、学习疾病知识、孝顺不攀比、维持希望、追忆已逝患癌父母。结论 晚期癌症患者子女对孝道动机具有良好的认知,在行孝过程中会产生消极情绪、渴望寻求帮助与支持的心理体验。提示应积极发现并帮助子女在行孝过程中的困难与阻力,帮助子女优化行孝方式,从而提高患者及其照顾者的生活质量。

关键词: 子女, 孝道, 肿瘤, 质性研究

Abstract: Objective To explore the filial piety motivation and experience among children of advanced cancer patients, and to provide reference for clinical nursing intervention. Methods An in-depth semi-structured interview with twenty children of advanced cancer patients in Tianjin Medical University Cancer Institute and Hospital was conducted. Colaizzi’s method of data analysis was used to identify themes in the data. Results Three themes of filial piety motivation extracted from the study were:filial piety passed down from generation to generation, gratitude and feedback, and social expectation; three themes in terms of filial piety experience were sense of guilty,helplessness and stress-coping and five themes in filial piety behaviors were companionship, being obedient to parents, disease knowledge, comparison of filial piety and maintaining hope. Conclusion Children of advanced cancer patients have adequate knowledge on filial piety motivation. Negative emotions and hope for help and support are always found during this process. More attention should be paid to the difficulty and obstacles in conducting filial piety, so as to provide advanced cancer patients with comprehensive and quality service and thus to improve their quality of life.

Key words: adult children, filial piety, cancer, qualitativeresearch

中图分类号: 

  • R473.73
[1] 陈群. 住院晚期癌症患者自杀意念与社会支持的现状及相关性研究[D].苏州:苏州大学,2017.
[2] 王鑫鑫,王霜霜,贾彦楠等.癌症患者的灵性需求现状及影响因素分析[J].护理学杂志, 2020,35(3):74-76.DOI:10.3870/j.issn.1001-4152.2020.03.074.
[3] Pelentsov LJ, Laws TA, Esterman AJ.The Supportive Care Needs of Parents Caring for a Child with a Rare Disease:A Scoping Review[J].Disabil Health J, 2015, 8(4):475-491.DOI:10.1016/j.dhjo.2015.03.009MLA.
[4] Xie L,Shen C,Shi Y, et al.Caregiver Burden among Primary Family Caregivers of Patients Undergoing Hematopoietic Stem Cell Transplantation: A Cross-sectional Study from Suzhou, China[J]. Cancer Nurs, 2021,44(6):E556-E566.DOI:10.1097/NCC.0000000000000895.
[5] 宋澍深,袁昊,袁长蓉,等.癌症患者照顾者需求评估工具的研究进展与展望[J].解放军护理杂志,2019,36(4):49-53.DOI:10.3969/j.issn.1008-9993.2019.04.012.
[6] Tsutsui T, Muramatsu N, Higashino S.Changes in Perceived Filial Obligation Norms among Coresident Family Caregivers In Japan[J]. Gerontologist,2014,54(5):797-807. DOI:10.1093/geront/gnt093.
[7] Kim KH.Factors Affecting Attitudes Toward Filial Piety among Participants in Long-term Caregivers Education Courses[J]. Pogon Sahoe Yongu, 2011, 31(2):304-342.DOI:10.15709/hswr.2011.31.2.304.
[8] Ng HY,Griva K,Lim HA, et al.The Burden of Filial Piety:A Qualitative Study on Caregiving Motivations amongst Family Caregivers of Patients with Ccancer in Singapore[J]. Psychology and Health, 2016, 31(11):1-37.DOI:10.1080/08870446.2016.1204450.
[9] 李峥,刘宇. 护理学研究方法[M]. 北京:人民卫生出版社,2015:197-292.
[10] 马霏,李惠玲,吴燕铭.居家养老照护员人文关怀实践体验的质性研究[J].护理学报,2021, 28(10):7-10. DOI:10.16460/j.issn1008-9969.2021.10.007.
[11] Olawa BD,Omolayo BO, Azikiwe JC.Gender Influence on Loneliness and Family and Nonfamily Support among Older Adults: The Confounding Role of Widowhood[J]. J Women Aging,2021,33(3):268-287.DOI:10.1080/08952841.2019.1690370.
[12] 韩静,胡惠菊,唐启群,等.领悟社会支持在养老机构老年人孤独感与成功老龄化的中介效应[J].护理学报,2021,28(17):53-58.DOI:10.16460/j.issn1008-9969.2021.17.053.
[13] Zhang D,Wang R,Zhao X, et al.Role of Resilience and Social Support in the Relationship between Loneliness and Suicidal Ideation among Chinese Nursing Home Residents[J].Aging Men Health, 2020(13):1-11.DOI:10.1080/13607863.2020.1786798.
[14] Zelalem A, Kotecho MG, Adamek ME."The Ugly Face of Old Age": Elders’ Unmet Expectations for Care and Support in Rural Ethiopia[J]. Int J Aging Hum Dev,2020, 92(4):215-239.DOI:10.1177/0091415020911900.
[15] Aung TNN, Aung MN, Moolphate S,et al.Caregiver Burden and Associated Factors for the Respite Care Needs among the Family Caregivers of Community Dwelling Senior Citizens in Chiang Mai, Northern Thailand[J]. Int J Environ Res Public Health, 2021,18(11):5873.DOI:10.3390/ijerph18115873.
[16] 张晓天,邱雨,岳鹏,等.子女照护临终患者体验的Meta整合[J].护理学报,2021,28(18):28-34.DOI:10.16460/j.issn1008-9969.2021.18.028.
[17] Odeo S, Degu A.Factors Affecting Health-related Quality of Life among Prostate Cancer Patients: A Systematic Review[J]. J Oncol Pharm Pract,2020,26(8):1997-2010.DOI:10.1177/1078155220959414.
[18] Caputo A.The Emotional Experience of Caregiving in Dementia: Feelings of Guilt and Ambivalence Underlying Narratives of Family Caregivers[J]. Dementia(London),2021,20(7):2248-2260.DOI:10.1177/1471301221989604MLA.
[19] 刘红雨. 本土化临终关怀的生命伦理学审视[D].石家庄:河北师范大学,2020.
[20] Otto AK, Ketcher D, Heyman RE, Vadaparampil ST,et al.Communication between Advanced Cancer Patients and Their Family Caregivers:Relationship with Caregiver Burden and Preparedness for Caregiving[J]. Health Commun,2021,36(6):714-721.DOI:10.1080/10410236.2020.1712039MLA.
[21] Thomson MD, Genderson MW, Siminoff LA. Understanding Cancer Caregiver Burden over Time: Dyadic Assessments of Family Cohesion, Conflict and Communication[J].Patient Educ Couns,2021,12:S0738-3991(21)00672-8.DOI:10.1016/j.pec.2021.10.014.
[22] Wu LF, Lin C, Hung YC,et al.Effectiveness of Palliative Care Consultation Service on Caregiver Burden over Time between Terminally Ill Cancer and Non-cancer Family Caregivers[J]. Support Care Cancer, 2020,28(12):6045-6055.DOI:10.1007/s00520-020-05449-2.
[23] 崔晶晶. 六步癌症告知模型在肺癌护理中的应用及对患者自我接纳水平、心理状态的影响[J].中国医药指南,2021,19(27):129-131.DOI:10.15912/j.cnki.gocm.2021.27.049.
[24] 张洪松,杨立丽.癌症病情告知的家庭主义模式[J].医学与哲学,2020,41(9):17-19.DOI:10.12014/j.issn.1002-0772.2020.09.05.
[1] 张丽娟, 李金兰, 钟巧玲, 罗庆华, 张慧珍, 谢新华, 覃惠英. 癌症患者术后下肢淋巴水肿行综合消肿治疗联合泡沫颗粒绷带的效果观察[J]. 护理学报, 2021, 28(9): 62-65.
[2] 程爽, 熊振芳, 蔡艺, 陈涵彬, 惠靖瑞. 父母接受孤独症儿童诊断经历质性研究的系统评价[J]. 护理学报, 2021, 28(9): 35-42.
[3] 卢婷, 应燕萍, 徐谊, 袁丽秀, 周琼, 黄彪进. 握力与NRS 2002在恶性肿瘤患者营养风险筛查中的对比研究[J]. 护理学报, 2021, 28(9): 1-4.
[4] 黄海英, 苏小玲, 黄永贤, 曹燕锋, 李晓华. 4例血液肿瘤患儿PICC拔管困难的原因分析及对策[J]. 护理学报, 2021, 28(8): 69-71.
[5] 陈思羽. 老年医学科低年资护士对临终患者死亡事件体验的质性研究[J]. 护理学报, 2021, 28(7): 74-78.
[6] 刘萍, 尤奥林, 刘姝, 李亚楠, 栾晓嵘. 我国护理硕士专业学位研究生就读期间培养体验质性研究的Meta整合[J]. 护理学报, 2021, 28(7): 35-42.
[7] 李换则, 陈鸿芳, 黄丽群, 安芳芳, 徐鹏, 庄苗青, 张露语, 王嘉懿. 急诊科护士临终照护体验质性研究的Meta整合[J]. 护理学报, 2021, 28(7): 43-48.
[8] 何怡庆, 周红, 高祖梅. 护士同情疲劳真实体验质性研究的Meta整合[J]. 护理学报, 2021, 28(6): 33-37.
[9] 崔娟, 孙香莲, 杨科, 王杰敏, 李洪利, 尹崇高. 乳腺癌术后患者身体意象和性调节现状及影响因素分析[J]. 护理学报, 2021, 28(6): 1-5.
[10] 李玉娟, 李君艳, 欧阳艳琼. 孕妇参与群组孕期保健体验质性研究的Meta整合[J]. 护理学报, 2021, 28(6): 6-12.
[11] 郭晓宇, 王丽媛. 参与突发急性传染病护士救治体验的Meta整合[J]. 护理学报, 2021, 28(4): 43-49.
[12] 侯艳, 张云, 高蓉, 刘宝吉, 赵卿. 恶性肿瘤患者疼痛认知量表的汉化和信效度检验[J]. 护理学报, 2021, 28(4): 62-66.
[13] 刘蕊, 韩雪娜, 杨富国, 耿文垚, 丁遥遥, 李梦飞. 脑卒中后重返工作阻碍因素质性研究的Meta 整合[J]. 护理学报, 2021, 28(24): 36-41.
[14] 张佳惠, 庞书勤, 李绵利, 葛莉, 郑智慧, 洪雪珮. 城市社区老年前期人群自我养老准备的质性研究[J]. 护理学报, 2021, 28(24): 12-16.
[15] 陆宁宁, 程芳, 邾萍, 马珠月. 乳腺癌患者女性一级亲属照顾者真实体验质性研究[J]. 护理学报, 2021, 28(22): 1-5.
Viewed
Full text


Abstract

Cited
  Shared   
No Suggested Reading articles found!