护理学报 ›› 2019, Vol. 26 ›› Issue (23): 50-54.doi: 10.16460/j.issn1008-9969.2019.23.050
王业青, 宋洁, 张小满, 肖萍, 吴淑琳
摘要: 目的 整合痴呆症患者居家照顾者需求的质性研究,为开展满足照顾者需求的干预研究,推动政策发展及服务改善提供可靠的依据。方法 检索The Cochrane Library、PubMed、CINAHL、EMBase、Scopus、PsycINFO、中国知网、万方、中国生物医学文献数据库(CMB)、维普数据库,自建库至2018年12月收录的关于痴呆症患者居家照顾者需求的质性研究。采用澳大利亚JBI循证卫生保健中心的质性研究评价标准进行文献质量评价,采用汇集性整合方法整合结果。结果 共纳入19项研究,提炼出62个完整明确的结果,经过归纳组合后形成6个新的类别,得到2个整合结果:与痴呆症患者管理相关的照顾者需求;照顾者自身需求。结论 需对痴呆症患者居家照顾者的实际需求,开展满足照顾者需求的干预研究,推动政策发展及服务改善。
中图分类号:
[1] World Health Organization.WHO Dementia[EB/OL].(2017-12-30)[2018-02-04].http://www.who.int/mediacentre/factsheets/fs362/en/. [2] 王敏,孙慧敏.老年痴呆照顾者虐待行为及影响因素研究进展[J].中华现代护理杂志,2015,16(12):1034-1041.DOI: 10.3760/cma.j.issn.1674-2907.2015.22.040. [3] 国内痴呆症患者照顾者照护体验质性研究的Meta整合[J].国内痴呆症患者照顾者照护体验质性研究的Meta整合[J].护理学报, 2018, 25(23):28-34.DOI:10.16460/j.issn1008-9969.2018.23.028. [4] Phillipson L, Jones S C, Magee C A.Review of the Factors Associated with the Non-use of Respite Services by Carers of People with Dementia:Implications for Policy and Practice[J].Health Soc Care Community,2014, 22(1):1-12.DOI:10.1111/hsc.12036. [5] The Joanna Briggs Institute. Critical Appraisal Tools for Qualitative Research[EB/OL].(2014-09-19)[2016-09-19].http://joanna-briggs.org/research/critical-appraisal-tools. [6] Lockwood C, Munn Z, Porritt K.Qualitative Research Synthesis:Methodological Guidance for Systematic Reviewers Utilizing Meta-aggregation[J]. Int J Evid Based Healthc,2015,13(3):179-187.DOI:10.1097/XEB.0000000000000062. [7] The Joanna Briggs Institute.Joanna Briggs Institute Reviewers'Manual 2014[EB/OL].(2014-09-19)[2016-09-19].http://joannabriggs.org/assets/docs/sumari/Reviewers Manual-2014. [8] 刘晓双,周晓美,柳韦华.2000-2015年我国老年痴呆症患者生活质量或照顾者负担研究文献计量分析[J].护理学报, 2016, 23(5):35-37.DOI:10.16460/j.issn1008-9969.2016.05.035. [9] Lampley-Dallas V T, Mold J W, Flori D E.Perceived Needs of African-American Caregivers of Elders with Dementia[J].J Natl Med Assoc,2001,93(2):47-57. [10] Paun O.Older Women Caring for Spouses with Alzheimer's Disease at Home:Making Sense of the Situation[J]. Health Care Women Int, 2003,24(4):292-312.DOI:10.1080/07399330390183615. [11] Brown J W, Alligood M R.Realizing Wrongness:Stories of Older Wife Caregivers[J].J Appl Gerontol,2004,23(2):104-119. [12] Farran C J, Loukissa D, Perraud S,et al.Alzheimer's Disease Care Giving Information and Skills. Part II:Family Caregiver Issues and Concerns[J].Res Nurs Health, 2004,27(1):40-51.DOI:10.1002/nur.20006. [13] Furlong K E, Wuest J.Self-care Behaviors of Spouses Caring for Significant Others with Alzheimer's Disease:The Emergence of Self-care Worthiness as a Salient Condition[J].Qual Health Res, 2008, 18(12):1662-1672.DOI:10.1177/1049732308327158. [14] Adelaida Zabalegui, Andeu Bover, Encarna Rodriquez,et al.Informal Caregiving:Perceived Needs[J]. Nurs Sci Q,2008,21(2):166-172.DOI:10.1177/0894318408314978. [15] de Jong J D, Boersma F. Dutch Psychogeriatric Day-care Centers:A Qualitative Study of the Needs and Wishes of Carers[J]. Int Psychogeriatr,2009,21(2):268-277.DOI:10.1017/S1041610208008247. [16] Chan W C, Ng C, Mok C C M, et al.Lived Experience of Caregivers of Persons with Dementia in Hong Kong:A Qualitative Study[J].East Asian Arch Psychiatry,2010,20(1):163-168. [17] O'Shaughnessy M O, Lee K, Lintern T. Changes in the Couple Relationship in Dementia Care: Spouse Carers' Experiences[J].Dementia,2010,9(2):237-258. [18] Samia L W, Hepburn K, Nichols L.Flying by the Seat of Our Pants:What Dementia Family Caregivers Want in an Advanced Caregiver Training Program[J].Res Nurs Health,2012,35(6):598-609.DOI:10.1002/nur.21504. [19] Söderhamn U, Landmark B, Eriksen S,et al.Participation in Physical and Social Activities Among Home-dwelling Persons with Dementia-experiences of Next of Kin[J].Psychol Res Behav Manag,2013(6):29-36.DOI:10.2147/PRBM.S46334. [20] Vaingankar J A, Subramaniam M, Picco L, et al.Perceived Unmet Needs of Informal Caregivers of People with Dementia in Singapore[J].Int Psychogeriatr,2013, 25(10):1605-1619.DOI:10.1017/S1041610213001051. [21] Shanley C, Russell C, Middleton H, et al.Living through End-stage Dementia:The Experiences and Expressed Needs of Family Carers[J].Dementia,2011,10(3):325-340. [22] Ball L, Jansen S, Desbrow B, et al.Experiences and Nutrition Support Strategies in Dementia Care: Lessons from Family Carers[J].Nutr Diet,2015,72(5):22-29. [23] Boots L M M, Wolfs C A G, Verhey F R J,et al.Qualitative Study on Needs and Wishes of Early-stage Dementia Caregivers:The Paradox Between Needing and Accepting Help[J].Int Psychogeriatr, 2015, 27(6):927-936.DOI:10.1017/S1041610214002804. [24] Griffiths J, Bunrayong W.Problems and Needs in Helping Older People with Dementia with Daily Activities: Perspectives of Thai Caregivers[J].Br J Occup Ther,2016,79(2):78-84. [25] Moyle W, Bramble M, Bauer M, et al.They Rush You and Push You Too Much and You Can't Really Get Any Good Response off Them:A Qualitative Examination of Family Involvement in Care of People with Dementia in Acute Care[J].Australas J Ageing,2016,35(2):30-34.DOI:10.1111/ajag.12251. [26] Peterson K,Hahn H,Lee AJ,et al.In the Information Age,Do Dementia Caregivers Get the Information They Need?Semi-structured Interviews to Determine Informal Caregivers' Education Needs,Barriers,and Preferences[J]. BMC Geriatr,2016,16(1):164.DOI:10.1186/s12877-016-0338-7. [27] Samson Z B, Parker M, Dye C, et al.Experiences and Learning Needsof African American Family Dementia Caregivers[J]. Am J Alzheimers Dis Other Demen,2016,31(6):492-501.DOI:10.1177/1533317516628518. |
[1] | 刘丽萍, 吴艳妮, 从维莲, 胡明钰, 李晓霞, 周春兰. 癌症患者化疗期自我护理体验质性研究的系统评价[J]. 护理学报, 2020, 27(7): 1-6. |
[2] | 林莉莉, 文冲, 程重重, 雷艳, 王冬霞. 301 名海南“候鸟”老人疾病特征调查及延续护理需求分析[J]. 护理学报, 2020, 27(7): 48-50. |
[3] | 谭蓉, 胡德英, 刘义兰, 罗凯燕. 医院患者自杀事件中731名第二受害者体验和支持需求水平分析[J]. 护理学报, 2020, 27(6): 29-34. |
[4] | 尹霄朦, 胡波, 王薇, 姜园园, 莘秀芳, 朱秀丽. 基于角色理论医学硕士研究生对导师角色期望的质性研究[J]. 护理学报, 2020, 27(5): 1-5. |
[5] | 张新, 崔菡斐, 董凤齐, 郑瑞双. 护理学硕士学历护士临床工作体验的Meta整合[J]. 护理学报, 2020, 27(4): 25-31. |
[6] | 张丹妮, 朱慧, 谢传艺, 陈肖敏. 乳腺癌患者配偶照顾体验质性研究的Meta整合[J]. 护理学报, 2020, 27(4): 32-36. |
[7] | 李文玉, 涂文怡, 郑静, 黄小芳, 刘庆华, 徐小群. 样本量对质性研究主题与现象诠释的影响研究[J]. 护理学报, 2020, 27(3): 62-65. |
[8] | 田凡立, 李惠玲, 杜美兰, 蒋芳琴, 张新梅, 殷雪群. 新型冠状病毒肺炎下援鄂男护士情绪体验的质性研究[J]. 护理学报, 2020, 27(12): 46-49. |
[9] | 叶冬婷, 张沁莲, 景霜, 郭佳, 邢雁芬. 家属对ICU患者转出体验的Meta整合[J]. 护理学报, 2020, 27(11): 33-39. |
[10] | 周莹, 卢洪洲, 张林, 孙美艳. 门诊艾滋病男患者对个案管理体验的质性研究[J]. 护理学报, 2020, 27(10): 1-4. |
[11] | 黄莺莺, 曹卫平, 韦嘉洁, 李妍. 妊娠期高血压疾病患者患病体验的质性研究[J]. 护理学报, 2020, 27(10): 5-9. |
[12] | 詹昱新, 杨中善, 莫梦燕, 李素云, 喻姣花. 患者参与患者安全知信行质性研究的系统评价[J]. 护理学报, 2020, 27(10): 36-42. |
[13] | 王鹏程, 孟爱凤, 智晓旭, 汤琳, 路莉静, 浦亚楼. 青少年癌症患者生活体验质性研究的Meta整合[J]. 护理学报, 2020, 27(10): 43-48. |
[14] | 于洁, 贾锟, 宋菲菲, 季红. 老年人成功老龄态度质性研究的Meta整合[J]. 护理学报, 2020, 27(1): 28-33. |
[15] | 朱慧, 张丹妮, 陈肖敏, 陈圆圆, 戴敏, 鲍娴. 慢性下腰痛患者生活体验质性研究的Meta整合[J]. 护理学报, 2020, 27(1): 34-38. |
|