以质量求发展,以服务铸品牌

护理学报 ›› 2018, Vol. 25 ›› Issue (19): 23-28.doi: 10.16460/j.issn1008-9969.2018.19.023

• 文献研究 • 上一篇    下一篇

国内外晚期癌症患者灵性照护及启示

刘星, 孙向红, 范玲   

  1. 中国医科大学附属盛京医院 护理部,辽宁 沈阳 110011
  • 收稿日期:2018-08-30 出版日期:2018-10-10 发布日期:2020-07-06
  • 通讯作者: 范 玲(1967-),女,辽宁沈阳人,硕士,主任护师,护理部主任。
  • 作者简介:刘 星(1988-),女,陕西宝鸡人,本科学历,硕士研究生在读。
  • 基金资助:
    2017年护理管理科研基金资助项目(CNM-2017-03)

Spiritual Care for Terminal Cancer Patients at Home and Aboard and Its Inspiration

LIU Xing, SUN Xiang-hong, FAN Ling   

  • Received:2018-08-30 Online:2018-10-10 Published:2020-07-06

摘要: 目的 探讨国外晚期癌症患者灵性照顾现状,为我国晚期癌症患者的灵性照顾提供参考。方法 采用文献综述的方法分析国内外晚期癌症患者灵性照护现状。结果 国外晚期癌症患者的灵性照顾发展较为成熟,具有完善的灵性评估工具,全方位的灵性干预团队,成熟的灵性照护策略,客观的效果评价体系等。我国的灵性照护发展起步较晚,照护团队不完善,照护方案质量良莠不齐,严重制约我国晚期癌症患者灵性照护的开展。结论 国外晚期癌症患者的灵性照护已有成熟的策略、团队、评估工具和评价体系等,灵性照护可以帮助晚期癌症患者缓解焦虑、不安和恐惧等负性情绪,提高患者的生活质量。

关键词: 癌症, 晚期, 灵性照护, 需求评估, 照护措施

中图分类号: 

  • R473.73
[1] Chung L Y, Wong F K, Chan M F.Relationship of Nurses’ Spirituality to Their Understanding and Practice of Spiritual Care[J]. J Adv Nurs, 2010, 58(2):158-170. DOI:10.1111/j.1365-2648.2007.04225.x.
[2] Dhar N, Chaturvedi S, Nandan D.Spiritual Health Scale 2011: Defining and Measuring 4th Dimension of Health[J]. Indian J Commun Med, 2011, 36(4):275-282. DOI:10.4103/0970-0218.91329.
[3] 吴沛霞,武芮竹. 灵性照护:整体护理应有的知能[J]. 中国实用护理杂志, 2012, 28(s1):206-207.
[4] 乔靖英. 宁养医疗工作中对灵性的认识[C]//中国抗癌协会癌症康复与姑息治疗专业委员会.第七届全国癌症康复与姑息医学大会大会论文集和专题讲座.中国抗癌协会癌症康复与姑息治疗专业委员会, 2011.
[5] Vilalta A, Valls J, Porta J, et al.Evaluation of Spiritual Needs Of Patients With Advanced Cancer in a Palliative Care Unit[J]. J Palliat Med, 2014, 17(5):592-600. DOI:10.1089/jpm.2013.0569.
[6] 何嫚. 灵性照护在晚期肿瘤患者中的研究进展[J].护理学杂志,2017, 32(13):102-105.DOI:10.3870/j.issn.1001-4152.2017.13.102.
[7] Skalla K, Mccoy J P.Spiritual Assessment of Patients with Cancer: The Moral Authority, Vocational, Aesthetic, Social, And Transcendent Model[J]. Oncol Nurs Forum, 2007, 33(4):745-751. DOI:10.1188/06.ONF.745-751.
[8] Highfield M F.Spiritual Assessment Across The Cancer Trajectory: Methods And Reflections[J]. Semin Oncol Nurs, 1997,13(4):237-241.DOI:10.1016/S0749-2081(97)80017-4.
[9] Rodin D, Balboni M, Mitchell C,et al.Whose Role? Oncology Practitioners’ Perceptions of Their Role in Providing Spiritual Care To Advanced Cancer Patients[J]. Support Care Cancer, 2015, 23(9):2543-2550. DOI:10.1007/s00520-015-2611-2.
[10] Edwards A, Pang N, Shiu V, et al.The Understanding of Spirituality and the Potential Role of Spiritual Care in End-of-life and Palliative Care: A Meta-Study of Qualitative Research[J]. Palliative Medicine, 2010, 24(8):753-770. DOI:10.1177/0269216310375860.
[11] Van L R, Schepakkerman A, van Laarhoven H W. Screening Patient Spirituality and Spiritual Needs in Oncology Nursing[J]. Holistic Nursing Practice, 2013, 27(27):207-216. DOI:10.1097/HNP.0b013e318294e690.
[12] Bussing A, Balzat H J, Heusser P.Spiritual Needs of Patients With Chronic Pain Diseases and Cancer - Validation of the Spiritual Needs Questionnaire[J]. European Journal of Medical Research, 2010, 15(6):266-273.
[13] Hermann C.Development and Testing of the Spiritual Needs Inventory for Patients Near the End of Life[J]. Oncology Nursing Forum, 2006, 33(4):737-744. DOI:10.1188/06.onf.737-744.
[14] Sharma R K, Astrow A B, Texeira K, et al.The Spiritual Needs Assessment for Patients (SNAP): Development And Validation of a Comprehensive Instrument to Assess Unmet Spiritual Needs[J]. Journal of Pain & Symptom Management, 2012, 44(1):44-51.DOI:10.1016/j.jpainsymman.2011.07.008.
[15] Vivat B, Young T E, Winstanley J, et al.The International Phase 4 Validation Study of the EORTC QLQ-SWB32: A Stand-alone Measure of Spiritual Well-being for People Receiving Palliative Care for Cancer[J]. European Journal of Cancer Care, 2017, 26(6):0961-5423. DOI:10.1111/ecc.12697.
[16] Puchalski C, Ferrell B, Virani R, et al.Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference[J]. Journal of Palliative Medicine, 2011, 41(1):167-168. DOI:10.1089/jpm.2009.0142.
[17] Sankhe A, Dalal K, Agarwal V, et al.Spiritual Care Therapy on Quality of Life in Cancer Patients and Their Caregivers: A Prospective Non-randomized Single-Cohort Study[J]. Journal of Religion & Health, 2017, 56(2):725-731. DOI:10.1007/s10943-016-0324-6.
[18] 郭静波,王玉梅.灵性照顾与辞世教育[J].医学与哲学(B),2013,34(1):13-15.
[19] Piderman K M, Breitkopf C R, Jenkins S M, et al.A Chaplain-led Spiritual Life Review Pilot Study for Patients with Brain Cancers and Other Degenerative Neurologic Diseases, Rambam Maimonides Medical Journal[J]. Rambam Maimonides Med J,2015,6(2):e0015. DOI:10.5041/RMMJ.10199.
[20] 颜轶隽,卞雷斯,张文婷,等.灵性照顾在社区临终关怀病房中应用的研究[J].中国卫生产业,2016, 13(1):195-198. DOI:10.16659/j.cnki.1672-5654.2016.01.195.
[21] Crammer C, Kaw C, Gansler T, et al.Cancer Survivors’ Spiritual Well-being and Use of Complementary Methods: A Report from the American Cancer Society’s Studies of Cancer Survivors[J]. Journal of Religion & Health, 2011, 50(1):92-107. DOI:10.1007/s10943-010-9327-x.
[22] Mao J J, Cronholm P F, Stein E, et al.Positive Changes, Increased Spiritual Importance, and Complementary and Alternative Medicine (CAM) Use among Cancer Survivors[J]. Integrative Cancer Therapies, 2010, 9(4):339-347. DOI:10.1177/1534735410387419.
[23] Hulett J M, Armer J M.A Systematic Review of Spiritually Based Interventions and Psychoneuroimmunological Outcomes in Breast Cancer Survivorship, Integr Cancer?[J]. Integrative Cancer Therapies, 2016, 15(4):405-423. DOI: 10.1177/1534735416636222.
[24] Akbari M E, Kashani F L, Ahangari G, et al.The Effects of Spiritual Intervention and Changes in Dopamine Receptor Gene Expression in Breast Cancer Patients[J]. Breast Cancer, 2016,23(6):893-900. DOI:10.1007/s12282-015-0658-z.
[25] Hosseini L, Kashani F L, Akbari S, et al.The Islamic Perspective of Spiritual Intervention Effectiveness on Bio-Psychological Health Displayed by Gene Expression in Breast Cancer Patients[J]. Iranian Journal of Cancer Prevention, 2016, 9(2):e6360. DOI:10.17795/ijcp-6360.
[26] Rettger J, Wall K, Corwin D, et al.In Psycho-spiritual Integrative Therapy for Women with Primary Breast Cancer, What Factors Account for the Benefits? Insights from a Multiple Case Analysis[J]. Healthcare, 2015, 3(2):263-283. DOI:10.3390/healthcare3020263.
[27] Garlick M, Wall K, Corwin D, et al.Psycho-spiritual Integrative Therapy for Women with Primary Breast Cancer[J]. Journal of Clinical Psychology in Medical Settings,2011, 18(1):78-90. DOI:10.1007/s10880-011-9224-9.
[28] Sakineh Zamaniyan M, Jafar Bolhari M, Naziri G, et al.Effectiveness of Spiritual Group Therapy on Quality of Life and Spiritual Well-being among Patients with Breast Cancer[J]. Iranian Journal of Medical Sciences, 2016, 41(2):140-144.
[29] Chida Y, Schrempft S, Steptoe A.A Novel Religious/Spiritual Group Psychotherapy Reduces Depressive Symptoms in a Randomized Clinical Trial[J]. Journal of Religion & Health, 2016,55(5):1495-1506. DOI:10.1007/s10943-015-0113-7.
[30] Ebrahimi H, Kazemi A H, Fallahi K M, et al.The Effect of Spiritual and Religious Group Psychotherapy on Suicidal Ideation in Depressed Patients: A Randomized Clinical Trial[J]. Journal of Caring Sciences,2014, 3(2):131-140. DOI:10.5681/jcs.2014.014.
[31] Breitbart W, Rosenfeld B, Pessin H, et al.Meaning-centered Group Psychotherapy: An Effective Intervention for Improving Psychological Well-being in Patients with Advanced Cancer[J]. J Clin Oncol, 2015, 33(7):749-754. DOI:10.1200/JCO.2014.57.2198.
[32] Sutkeviciūte M, Stanciukaite M, Bulotiene G.Individual Meaning-centered Psychotherapy for Palliative Cancer Patients In Lithuania. A Case Report[J]. Acta Medica Lituanica, 2017, 24(1):67-73.DOI:10.6001/actamedica.v24i1.3464.
[33] Rosenfeld B, Saracino R, Tobias K, et al.Adapting Meaning-centered Psychotherapy for the Palliative Care Setting: Results of a Pilot Study[J]. Palliative Medicine, 2016, 31(2):140-146.DOI:10.1177/0269216316651570.
[34] Jafari N, Farajzadegan Z, Zamani A, et al.Spiritual Therapy To Improve The Spiritual Well-being of Iranian Women With Breast Cancer: A Randomized Controlled Trial[J]. Evid Based Complement Alternat Med,2013,2013:353262. DOI:10.1155/2013/353262.
[35] Bower J E, Crosswell A D, Stanton A L, et al.Mindfulness Meditation for Younger Breast Cancer Survivors: A Randomized Controlled Trial[J]. Cancer, 2015, 121(8):1231-1240. DOI:10.1002/cncr.29194.
[36] Johns S A, Brown L F, Beckcoon K, et al.Randomized Controlled Pilot Study of Mindfulness-based Stress Reduction for Persistently Fatigued Cancer Survivors[J]. Psycho-Oncology, 2014, 24(8):885-893. DOI:10.1002/pon.3648.
[37] Ando M, Morita T, Akechi T, et al.Efficacy of Short-Term Life-Review Interviews on the Spiritual Well-being of Terminally Ill Cancer Patients[J]. Journal of Pain & Symptom Management, 2010,39(6):993-1002.DOI:10.1016/j.jpainsymman.2009.11.320.
[38] 王素明,王志中.灵性照顾在晚期癌症病人临终关怀中的应用[J].中国社会医学杂志,2018,35(1):42-45. DOI:10.3969/j.issn.1673-5625.2018.01.013.
[39] Noguchi W, Ohno T, Morita S, et al.Reliability and Validity of the Functional Assessment of Chronic Illness Therapy-Spiritual (FACIT-Sp) for Japanese Patients with Cancer[J]. Supportive Care in Cancer, 2004, 12(4):240-245. DOI: 10.1007/s00520-003-0582-1.
[40] Wang Y H, Liao H C.Construction and Validation of a Meaning in Life Scale in the Taiwanses Cultural Context[J]. Psychol Rep,2015,117(2):437-451.DOI:10.2466/08.07.PR0.117c19z4.
[41] Stiel S, Psych D, Kues K, et al.Assessment of Quality of Life in Patients Receiving Palliative Care: Comparison of Measurement Tools and Single Item on Subjective Well-Being[J]. Journal of Palliative Medicine, 2011, 14(5):599-606. DOI:10.1089/jpm.2010.0473.
[42] Hosseini L, Kashani F L, Akbari S, et al.The Islamic Perspective of Spiritual Intervention Effectiveness on Bio-Psychological Health Displayed by Gene Expression in Breast Cancer Patients[J]. Iranian Journal of Cancer Prevention, 2016, 9(2):6360-6360. DOI:10.17795/ijcp-6360.
[43] 单逸凡. 癌症晚期居家患者灵性照护探析[D]. 武汉:华中师范大学, 2016.
[44] 彭翠娥,谌永毅,王卫红.身心社灵全人护理模式在肿瘤患者护理中的应用现状[J].中国护理管理,2014,14(7):778-781. DOI:10.3969/j.issn.1672-1756.2014.07.033.
[45] 林章华,钟进才,张华萍.390例居家晚期癌症病人的全人照顾[J].护理研究,2013,27(1A):88-90. DOI:10.3969/j.issn.1009-6493.2013.01.040.
[46] 李冬梅. 在肿瘤患者中实施临床心灵关怀护理分析[J].中国卫生标准管理, 2015,6(25):222-223. DOI:10.3969/j.issn.1674-9316.2015.25.160.
[47] 邱婉婷,王素鴻,李國箴.用安寧療護理念於肝癌末期病人之護理經驗[J].澄清醫護管理雜誌,2013,9(4):54-62.
[48] 谢海燕,李梦奇,王颖,等.中文版患者对护士提供灵性照护的需求量表信效度初步检验[J].中国护理管理,2017,17(5):610-614.DOI:10.3969/j.issn.1672-1756.2017.05.010.
[49] 刘翔宇,韦迪,谌永毅,等.中文版慢性疾病治疗功能评估-灵性量表在癌症患者中的信效度评定[J].中华护理杂志, 2016,51(9):1085-1090. DOI:10.3761/j.issn.0254-1769.2016.09.014.
[50] Buessing A, Zhai X F, Peng W B, et al.Psychosocial and Spiritual Needs of Patients with Chronic Diseases: Validation of the Chinese Version of the Spiritual Needs Questionnaire[J]. Journal of Integrative Medicine, 2013, 11(2):106-115. DOI:10.3736/jintegrmed2013020.
[51] Cheng J F, Lin Y C, Huang P H, et al.Spiritual care Model for Terminal Cancer Patients[J]. Hu LI Za Zhi, 2014, 61(6):93-97. DOI:10.6224/JN.61.6.93.
[52] 吳麗芬,杜敏世.靈性与全人照护護[J].靈性護理,2010,3(186):5-6.
[53] 林沄萱,劉淑惠,陳清惠.靈性護理臨床應用[J].靈性護理,2008,55(3):69-74.
[54] 于乐静. 台湾长庚医院人性化护理服务介绍[J].护理学杂志,2012,27(13):21. DOI:10.3870/hlxzz.2012.13.021.
[55] 王艳华,李杨.晚期癌症患者宁养疗护中灵性需求的探讨[J].中国煤炭工业医学杂志,2015,18(5):847-850. DOI:10.11723/mtgyyx 1007-9564 201504049.
[56] 温锦旺. 姑息照护中医务社会工作支持小组对癌症患者的干预作用[J].南京医科大学学报(社会科学版),2014,14(6):441-444. DOI:10.7655/NYDXBSS20140604.
[57] 章冰. 尊重生命满足需求-晚期癌症患者的灵性照顾个案[J].医学信息(中旬刊),2010,5(10):3010. DOI:10.3969/j.issn.1006-1959.2010.10.414.
[58] 张晓霞,迟婷.癌症临终患者身心灵的全人照护个案[J].甘肃医药,2011,30(8):485-488. DOI:10.15975/j.cnki.gsyy.2011.08.013.
[59] 凡国华,林征,王林兰.香港医院全人护理模式启示及借鉴[J].江苏卫生事业管理,2018,29(2):257-259.
[60] 沈波涌,谌永毅,汤新辉.在肿瘤患者中实施临床心灵关怀的管理与实践[J].中国护理管理,2012,12(5):65-66.
[61] 肖文轩. 湖南省肿瘤医院开出心灵关怀“处方”[J].中国医院院长,2016(2):72-74.
[62] 邸淑珍,张靖,张学茹,等. 安宁疗护的起源、发展与展望[J].医学研究与教育,2018,35(1):7-12. DOI:10.3969/j.issn.1674-490X.2018.01.002.
[63] 华美锦. 安宁疗护在癌症临终期患者中的应用[J].护理实践与研究, 2018,15(13):110-112.DOI:10.3969/j.issn.1672-9676.2018.13.045.
[64] 庄菊萍. 晚期癌症病人对安宁疗护的需求现状及安宁疗护对病人生活质量的影响[J].全科护理, 2018, 16(19):2411-2413. DOI:10.12104/j.issn.1674-4748.2018.19.044.
[65] 曹明英. 肿瘤晚期患者安宁疗护的护理效果分析[J].实用临床护理学电子杂志,2018,3(20):106-109.
[66] 黄彩辉. 灵性照护--生命的终极关怀[J].中华现代护理杂志, 2015,21(30):3651-3653.
[67] 卞雷斯,颜轶隽,刘晓嫣.灵性照顾在社区临终关怀中的合理应用[J].医药前沿,2015,5(1):6-8.
[68] Xiao H, Kwong E, Pang S, et al.Perceptions of a Life Review Programme Among Chinese Patients With Advanced Cancer[J]. J Clin Nurs, 2012, 21(3/4):564-572. DOI:10.1111/j.1365-2702.2011.03842.x
[69] 邓涤,吴新,谢从华. 生命回顾中的愿望是一种容易被中国宁养患者理解的灵性需求的表达方式[C]//2014全国癌症康复与姑息医学大会,2014.
[70] 凡国华,林征,王林兰.香港医院全人护理模式启示及借鉴[J].江苏卫生事业管理,2018,29(2):257-259.
[71] Kichenadasse G, Sweet L, Harrington A.et al.The Current Practice, Preparedness and Educational Preparation of Oncology Professionals to Provide Spiritual Care[J]. Asia Pac J Clin Oncol,2017,13(5):e506-e514.DOI:10.1111/ajco.12654.
[72] Zakaria K M, Salehi A, Moosazadeh N A, et al.Spirituality and Spiritual Care In Iran: Nurses’ Perceptions and Barriers[J]. Int Nurs Rev, 2015, 62(4):584-592. DOI:10.1111/inr.12222.
[73] 李宁,田冰洁,赵丹,等.护理人员灵性照护教育研究进展[J].中国护理管理,2017,17(2):188-192. DOI:10.3969/j.issn.1672-1756.2017.02.011.
[74] Ebrahimi H, Areshtanab H N, Jafarabadi M A, et al.Health Care Providers’ Perception of Their Competence in Providing Spiritual Care for Patients[J]. Indian J Palliat Care, 2017, 23(1):57-61. DOI:10.4103/0973-1075.197957.
[75] 汤新辉,刘翔宇,谌永毅,等.心灵关怀照护对老年肿瘤患者社会支持和生活质量的影响[J].护理学杂志,2012,27(23):21-22. DOI:1001-4152 (2012) 23-0021-02.
[76] 程娟. 社会工作灵性研究[J].学理论,2015(32):41-42.
[77] 陈劲松. 灵性实践的误区与社会工作的介入[J].学海,2013(4):88-94.DOI:10.16091/j.cnki.cn32-1308/c.2013.04.021.
[78] Chao C S, Chen C H, Yen M.The Essence of Spirituality of Terminally Ill Patients[J]. J Nurs Res, 2002, 10(4):237-245.
[79] Rohde G, Kersten C, Vistad I, et al.Spiritual Well-being in Patients with Metastatic Colorectal Cancer Receiving Noncurative Chemotherapy: A Qualitative Study[J]. Cancer Nursing,2017,40(3):209-216.DOI:10.1097/NCC.0000000000000385.
[1] 陈冰,仲冬梅. 132例经肝动脉栓塞化疗肝癌中晚期患者自我效能现状调查[J]. 护理学报, 2018, 25(9): 48-50.
[2] 黄秀华,李伦兰,周利华,罗群,秦如梦. 妇科癌症患者自我表露与婚姻关系及焦虑抑郁的相关性分析[J]. 护理学报, 2018, 25(17): 58-60.
[3] 宋颖,田畅,阎玲. 208例肿瘤晚期患者尊严状况与病情进展知晓度相关性分析[J]. 护理学报, 2018, 25(16): 60-63.
[4] 凌陶,金瑞华,淮盼盼,杨琳. 227名实习护生护患沟通实践课程需求现状及影响因素分析[J]. 护理学报, 2018, 25(15): 37-41.
[5] 张丽燕,陆宇晗. 365例晚期癌症患者照顾者心理韧性现状及影响因素分析[J]. 护理学报, 2018, 25(14): 44-48.
[6] 宁晓东,万恩桂,杨春,李玲娟. 尊严疗法及人生回顾干预对晚期住院癌症患者尊严及心理状况的影响[J]. 护理学报, 2018, 25(13): 64-68.
[7] 熊沙沙,彭历,彭丽娟. 癌症患者发生癌性爆发痛的现状及影响因素分析[J]. 护理学报, 2017, 24(8): 26-29.
[8] 曹艳梅,薛云珍,葛国靖,牛润桂,辛丽艳,于静. 晚期癌症患者尊严现状及影响因素研究[J]. 护理学报, 2017, 24(7): 30-34.
[9] 刘红丽,余维倩,罗叶昕,胡军,杨鸿. 延续护理对癌痛患者居家自我管理的效果观察[J]. 护理学报, 2017, 24(6): 64-66.
[10] 陈斯雯,刘维维,刘玉萍. 癌症患者主要照顾者的积极感受现状及影响因素分析[J]. 护理学报, 2017, 24(4): 55-58.
[11] 亢东琴,刘玉芬,薛冬群,柳琪,李玉,陈志琦,岳树锦. 癌症患者体力活动测定量表EPIC-PAQ中文版的信效度评定[J]. 护理学报, 2017, 24(24): 1-4.
[12] 石嘉栋,周燕春. 58例晚期面瘫患者游离股薄肌瓣移植修复术的护理[J]. 护理学报, 2017, 24(23): 59-61.
[13] 严芳,张莉,艾春波. 胃癌化疗患者希望护理干预效果观察[J]. 护理学报, 2017, 24(18): 57-61.
[14] 张明君,康璇,张翠萍. 晚期癌症姑息治疗患者照顾负荷和家庭亲密度及适应性的相关性分析[J]. 护理学报, 2017, 24(18): 5-8.
[15] 张明君,康璇,赖巧蓉,张文玲,张翠萍. 晚期癌症患者主要照顾者照顾负荷及影响因素分析[J]. 护理学报, 2017, 24(17): 39-42.
Viewed
Full text


Abstract

Cited

  Shared   
No Suggested Reading articles found!