Journal of Nursing ›› 2022, Vol. 29 ›› Issue (18): 63-68.doi: 10.16460/j.issn1008-9969.2022.18.063
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Current Status of Family Resilience of Primary Caregivers of Children with Enterostomy and Its Influencing Factors: A 139-case Study
LI Xin1, HAN Yue-jiao2, WANG Ya-fei3a, LIU Yun4, PAN Ning4, LIU Feng3b
- 1. School of Nursing, Weifang Medical College, Weifang 261053, China;
2. Dept. of Anesthesiology, Jinan Children's Hospital, Jinan 250022, China;
3a. Department of Nursing; 3b. Wound Repair Center, the First Affiliated Hospital of Shandong First Medical University (Shandong Provincial Qianfoshan Hospital), Jinan 250014, China;
4. School of Nursing, Shandong First Medical University (Shandong Academy of Medical Sciences), Jinan 250014, China;
CLC Number:
- R47
| [1] 陈劼. 儿童造口护理[M].上海:世界图书出版公司,2021: 1. [2] Massenga A, Chibwae A, Nuri AA, et al.Indications for and Complications of Intestinal Stomas in the Children and Adults at a Tertiary Care Hospital in a Resource-limited Setting: A Tanzanian Experience[J]. BMC Gastroenterol, 2019,19(1):157. DOI:10.1186/s12876-019-1070-5. [3] The Members of the Global Paediatric Stoma Nurses Advisory Board (GPSNAB).Global Best Practice Guidelines for Neonates, Children and Teenagers[EB/OL].(2019-05-01)[2022-01-20].https://www.coloplastprofessional.com/coloplast-professional/ostomy-care/. [4] Walsh F.Family Resilience: A Framework for Clinical Practice[J]. Fam Process, 2003,42(1):1-18.DOI:10.1111/j.1545-5300.2003.00001.x. [5] American Academy of Pediatrics, Promoting?Resilience[EB/OL]. (2018-05-26) [2021-12-05]. https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/resilience/Pages/Promoting-Resilience.aspx. [6] 欧阳雅琦,谢鑑辉,梅海波,等.364例先天性胫骨假关节患儿照顾者家庭抗逆力现状及影响因素分析[J].护理学报,2021,28(5):1-5.DOI:10.16460/j.issn1008-9969.2021.05.001. [7] Al-Jadiri A, Tybor DJ, Mulé C, et al.Factors Associated with Resilience in Families of Children with Autism Spectrum Disorder[J]. J Dev Behav Pediatr,2021,42(1):16-22. DOI: 10.1097/DBP.0000000000000867. [8] 叶秀娟,王小燕,刘桂华,等.抽动障碍儿童主要照顾者家庭坚韧力及影响因素研究[J].中华护理教育,2021,18(3):279-284.DOI:10.3761/j.issn.1672-9234.2021.03.018. [9] 李峥,刘宇.护理学研究方法[M].2版.北京:人民卫生出版社,2018:58. [10] McCubbin HI, Thompson AI, McCubbin MA. Family Assessment: ResiliEncy,Coping and Adaptation-inventories for Research and Practice[M].Madison: University of Wisconsin System,1996. [11] 刘洋,杨金秋,叶本兰,等.中文版家庭坚韧性量表的信度和效度研究[J].护理管理杂志,2014,14(11):770-772. [12] Epstein NB, Baldwin LM, Bishop DS.The McMaster Family Assessment Device[J].J Marital Fam Ther,1983,9(2):171-180. [13] 李荣风,徐夫真,纪林芹,等.家庭功能评定量表的初步修订[J].中国健康心理学杂志,2013,21(7):996-1000. [14] Cong CW, Tan SA, Nainee S, et al.Psychometric Qualities of the McMaster Family Assessment Device-general Functioning Subscale for Malaysian Samples[J]. Int J Env Res Pub He, 2022, 19(4):2440-2440. DOI:10.3390/IJERPH 19042440. [15] 周彩峰,武恒双,李雅楠,等.孤独症患儿照顾者家庭功能对积极感受的影响研究[J].中华护理杂志, 2015, 50(12):1479-1484.DOI:10376/j.issn.0254-1796.2015.12.013. [16] 周颖群,栾风焕,姚德胜,等.上海市独生子女家庭的家庭功能及其影响因素研究[J].中国儿童保健杂志,2019,27(9):953-957.DOI:10.11852/zgetbjzz2018-1701. [17] 王亚菲,高振清,张楠,等.肠造口患儿家庭主要照顾者照护能力测评量表的编制及信效度检验[J].解放军护理杂志,2020,37(8):5-9.DOI:10.3969/j.issn.1008-9993.2020.08.002. [18] 贺佳,尹平.医学统计学[M].2版.北京:高等教育出版社,2020:296-297. [19] Bajjani GJ, Hinds P, Insel K, et al.Well-being, Self-transcendence, and Resilience of Parental Caregivers of Children in Active Cancer Treatment: Where Do We Go From Here?[J]. Cancer Nurs, 2019,42(5):E41-E52.DOI:10.1097/NCC.0000000000000662. [20] 徐玉英,刘桂华,李国凯,等.孤独症谱系障碍患儿照顾者家庭坚韧力状况及影响因素研究[J].护理学杂志,2017,32(7):65-68.DOI:10.3870/j.issn.1001-4152.2017.07.065. [21] 贾莉莉,越丽霞,张国增,等.肠造口患儿家庭照顾者积极感受与照护能力的相关性研究[J].中华护理教育,2021,18(5):464-469.DOI:10.3761/j.issn.1672-9234.2021.05.017. [22] 同雪莉. 长期患病家庭的抗逆力叙事:两种模式的比较[J].首都师范大学学报(社会科学版), 2019(1):178-188.DOI:10.3969/j.issn.1004-9142.2019.01.019. [23] Gülbeyaz B, Hamdiye AS, Veysiye Hü. Resilience, Life Satisfaction, Care Burden and Social Support of Mothers with a Child with Acute Lymphoblastic Leukaemia: A Comparative Study[J].Scand J Caring Sci,2020,34(2):340-347. DOI:10.1111/scs.12734. [24] Peng Y, Wang J, Sun G, et al.Family Hardiness in Patients with Heart Failure: Exploring Protective Factors and Identifying the Mediator[J]. Psychol Res Behav Ma, 2021, 14: 355-364.DOI:10.2147/PRBM.S301765. [25] 张清,倪志红,赵雪萍,等.慢性病患儿家庭功能状况及影响因素的研究进展[J].中国护理管理, 2021,21(8):1276-1280.DOI:10.3969/j.issn.1672-1756.2021.08.031. [26] Marín-Maicas P, Corchón S, Ambrosio L, et al.Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis[J].Int J Environ Res Public Health,2021,18(14):7294. DOI:10.3390/ijerph18147294. [27] David VL, Vardi A, Jacoby R.The Experiences of Parents of Children Undergoing Surgery for Congenital Heart Defects: A Holistic Model of Care[J].Front Psychol, 2019,27(10):2666. DOI:10.3389/fpsyg.2019.02666. [28] 潘小容,莫霖,刘倩,等.家庭正向行为支持方案的构建及应用研究[J].中华护理杂志志,2021,56(11):1618-1626.DOI:10.3761/j.issn.0254-1769.2021.11.003. |
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