护理学报 ›› 2021, Vol. 28 ›› Issue (2): 47-51.doi: 10.16460/j.issn1008-9969.2021.02.047
刘庆伟1, 邵美华2, 赵亚玲1, 尹霄朦1, 姜园园1, 朱秀丽1
LIU Qing-wei1, SHAO Mei-hua2, ZHAO Ya-ling1, YIN Xiao-meng1, JIANG Yuan-yuan1, ZHU Xiu-li1
摘要: 目的 以信息获取行为综合模型为框架,探索确诊时间≥1个月且呼吸困难程度评级1~4级的间质性肺疾病患者健康信息获取行为体验及影响因素,为制定针对性措施提供理论依据。方法 本研究为描述性质性研究,采用行为事件访谈法对14例住院间质性肺疾病患者进行访谈,根据主题分析法对访谈结果进行整理分析。结果 间质性肺疾病患者健康信息获取行为体验及影响因素提取出4个主题:信息获取渠道、疾病相关威胁、个人行为相关能力、社会人口学背景。结论 间质性肺疾病患者健康信息获取行为的改善不仅要关注患者自身态度,还要注重发展可靠、丰富的健康信息获取渠道,同时要注重改善临床医护人员健康知识宣教,从而促进行为发生。
中图分类号:
[1] 蔡后荣,张湘燕,李惠萍. 实用间质性肺疾病[M]. 2版.北京: 人民卫生出版社, 2016:2. [2] Holland AE, Watson A, Glaspole I.Comprehensive Pulmonary Rehabilitation for Interstitial Lung Disease: A Consensus Approach to Identify Core Education Topics[J]. Patient Educ Couns, 2019, 102(6):1125-1130. DOI:10.1016/j.pec.2019.01.010. [3] 王柳盛,李惠萍.中国大陆间质性肺疾病流行病学资料及研究进展[J].中华内科杂志, 2014, 53(8):652-654. DOI:10.3760/cma.j.issn.0578-1426.2014.08.019. [4] Javanmardi M, Noroozi M, Mostafavi F, et al.Challenges to Access Health Information During Pregnancy in Iran: A Qualitative Study from the Perspective of Pregnant Women, Midwives and Obstetricians[J]. Reprod Health, 2019, 16(1): 128. DOI:10.1186/s12978-019-0789-3. [5] Dean CA, Geneus CJ, Rice S, et al.Assessing the Significance of Health Information Seeking in Chronic Condition Management[J]. Patient Educ Couns, 2017, 100(8):1519-1526. DOI:10.1016/j.pec.2017.03.012. [6] Lambert SD, Loiselle CG.Health Information Seeking Behavior[J]. Qual Health Res, 2007,17(8):1006-1019. DOI:10.1177/1049732307305199. [7] 王美凤. 健康信息获取行为量表的汉化及其在糖尿病患者中的应用研究[D]. 天津:天津医科大学, 2017. [8] Bradley B, Branley HM, Egan JJ, et al.Interstitial Lung Disease Guideline: The British Thoracic Society in Collaboration with the Thoracic Society of Australia and New Zealand and the Irish Thoracic Society[J]. Thorax, 2008, 63(Suppl 5):1-58. DOI:10.1136/thx.2008.101691. [9] 中国医师协会风湿免疫科医师分会风湿病相关肺血管/间质病学组, 国家风湿病数据中心. 2018中国结缔组织病相关间质性肺病诊断和治疗专家共识[J].中华内科杂志, 2018, 57(8):558-565. DOI:10.3760/cma.j.issn.0578-1426.2018.08.005. [10] 吴运瑾,易祥华. 美国胸科学会/欧洲呼吸学会(2013)特发性间质性肺炎的国际多学科分类解读[J]. 中华病理学杂志,2015,44(3):158-163. DOI:10.3760/cma.j.issn.0529-5807.2015.03.002. [11] 徐天梦,赵洁,常红,等. 中青年脑卒中住院患者戒烟行为影响因素的质性研究[J]. 护理学杂志, 2018,33(5):28-31. DOI:10.3870/j.issn.1001-4152.2018.05.028. [12] Liu P, Wen W, Yu K, et al.Dental Care-seeking and Information Acquisition During Pregnancy:A Qualitative Study[J]. Int J Environ Res Public Health, 2019, 16(14):2621. DOI:10.3390/ijerph16142621. [13] Riggare S, Höglund PJ, Hvitfeldt Forsberg H, et al.Patients Are Doing It for Themselves: A Survey on Disease-specific Knowledge Acquisition Among People with Parkinson's Disease in Sweden[J]. Health Informatics J, 2019, 25(1): 91-105. DOI:10.1177/1460458217704248. [14] Mahler DA, Wells CK.Evaluation of Clinical Methods for Rating Dyspnea[J]. Chest, 1988, 93(3):580-586. DOI:10.1378/chest.93.3.580. [15] Johnson JD, Donohue WA, Atkin CK.A Comprehensive Model of Information Seeking[J]. Sci Commun, 1995, 16(3):274-303. DOI:10.1177/1075547095016003003. [16] Braun V, Clarke V.Using Thematic Analysis in Psychology[J]. Qual Res Psychol, 2006, 3(2):77-101. DOI:10.1191/1478088706qp063oa. [17] Proctor RW, Lu CH.Processing Irrelevant Location Information: Practice and Transfer Effects in Choice-reaction Tasks[J].Mem Cognit,1999,27:63-77. DOI:10.3758/bf03201214. [18] 王美凤,张清. 糖尿病患者健康信息获取行为量表的汉化及信效度检验[J]. 中华护理杂志,2016,51(11):1385-1389. DOI:10.3761/j.issn.0254-1769.2016.11.024. [19] 陆海晴,程洁. 基于区域肺部疾病护理联盟实施延续护理方案对间质性肺疾病患者干预效果的研究[J]. 中华护理杂志, 2018, 53(10):1179-1185. DOI:10.3761/j.issn.0254-1769.2018.10.005. [20] Fisher JH, O'Connor D, Flexman AM, et al. Accuracy and Reliability of Internet Resources for Information on Idiopathic Pulmonary Fibrosis[J]. Am J Respir Crit Care Med, 2016, 194(2):218-225. DOI:10.1164/rccm.201512-2393OC. [21] Din HN, Mcdaniels-Davidson C, Nodora J, et al.Profiles of a Health Information-seeking Population and the Current Digital Divide: Cross-sectional Analysis of the 2015-2016 California Health Interview Survey[J]. J Med Internet Res, 2019, 21(5):e11931. DOI:10.2196/11931. [22] 彭晓芸. 病友同伴支持互助干预对冠心病患者自我效能水平的影响[J]. 护理学报, 2018, 25(10):67-69. DOI:10.16460/j.issn1008-9969.2018.10.067. [23] 赵海艳,张远波,马玉芬,等. 同伴支持对提高乳腺癌术后患者益处发现的实施体会[J]. 护理学报, 2017, 24(14): 76-78. DOI:10.16460/j.issn1008-9969.2017.14.076. [24] Holland AE, Fiore JF, Goh N, et al.Be Honest and Help Me Prepare for the Future:What People with Interstitial Lung Disease Want from Education in Pulmonary Rehabilitation[J]. Chron Respir Dis, 2015, 12(2):93-101. DOI:10.1177/1479972315571925. [25] Lu X, Zhang R, Wu W, et al.Relationship Between Internet Health Information and Patient Compliance Based on Trust: Empirical Study[J]. J Med Internet Res, 2018, 20(8):e253. DOI:10.2196/jmir.9364. [26] 王磊,秦瑛. 间质性肺病患者的疾病感知现状及影响因素研究[J].中国护理管理, 2017, 17(11):1567-1571. DOI:10.3969/j.issn.1672-1756.2017.11.027 . [27] 孙秋子,周文琴,张莹,等. 慢性病患者健康信息搜寻行为的调查分析[J]. 护理学杂志, 2019, 34(9):89-91. DOI:10.3870/j.issn.1001-4152.2019.09.084. |
[1] | 陈婷婷,周云仙,陈焰. 炎症性肠病患者乳制品摄入认知态度和行为的质性研究[J]. 护理学报, 2017, 24(5): 1-5. |
|